Leeds Institute of Health Sciences, University of Leeds, Leeds, England, UK.
Leeds Institute of Health Sciences, University of Leeds, Leeds, England, UK.
Value Health. 2020 Aug;23(8):1079-1086. doi: 10.1016/j.jval.2020.04.1827. Epub 2020 Jul 19.
Dementia affects many people, with numbers expected to grow as populations age. Many people with dementia receive informal/family/unpaid care, for example, from a spouse or child, which may affect carer quality of life. Measuring the effectiveness of health/social care interventions for carers requires a value measure of the quality-of-life impact of caring. This motivated development of the Scales Measuring the Impact of Dementia on Carers-D (SIDECAR-D) instrument. This study aimed to obtain general population values for SIDECAR-D to aid incorporating the impact of caring in economic evaluation.
Members of the UK general public completed a best-worst scaling object case survey, which included the 18 SIDECAR-D items and EQ-5D-3L descriptions. Responses were analyzed using scale-adjusted finite mixture models. Relative importance scores (RISs) for the 18 SIDECAR-D items formed the SIDECAR-D relative scale measuring the relative impact of caring. The SIDECAR-D tariff, on the full health = 1, dead = 0 scale, was derived by rescaling EQ-5D-3L and SIDECAR-D RISs so the EQ-5D-3L RISs equaled anchored valuations of the EQ-5D-3L pits state from a visual analog scale task.
Five hundred ten respondents completed the survey. The model had 2 parameter and 3 scale classes. Additive utility decrements of SIDECAR-D items ranged from -0.05 to -0.162. Utility scores range from 0.95 for someone affirming 1 item to -0.297 for someone affirming all 18.
SIDECAR-D is a needs-based scale of the impact on quality of life of caring for someone with dementia, with a valuation tariff to support its use in economic evaluation.
痴呆影响着许多人，随着人口老龄化，这一数字预计还会增加。许多痴呆患者接受非正规/家庭/无偿护理，例如配偶或子女的护理，这可能会影响照顾者的生活质量。衡量对照顾者的健康/社会护理干预措施的有效性需要衡量护理对生活质量的影响的价值衡量标准。这促使开发了衡量痴呆对照顾者影响的量表-D（SIDECAR-D）工具。本研究旨在为 SIDECAR-D 获得一般人群的价值，以帮助将护理的影响纳入经济评估。
英国普通公众成员完成了最佳最差分级对象案例调查，其中包括 18 个 SIDECAR-D 项目和 EQ-5D-3L 描述。使用经过调整的规模有限混合模型分析了响应。18 个 SIDECAR-D 项目的相对重要性评分（RIS）构成了衡量护理相对影响的 SIDECAR-D 相对规模。SIDECAR-D 关税是根据 EQ-5D-3L 和 SIDECAR-D RIS 进行调整得出的，以便 EQ-5D-3L RIS 等于从视觉模拟量表任务中锚定的 EQ-5D-3L 坑状态的估值。
510 名受访者完成了调查。该模型有 2 个参数和 3 个规模类别。SIDECAR-D 项目的附加效用递减范围从-0.05 到-0.162。效用得分范围从 0.95（有人肯定 1 个项目）到-0.297（有人肯定所有 18 个项目）。
SIDECAR-D 是衡量照顾痴呆症患者对生活质量影响的基于需求的量表，具有估值关税，以支持其在经济评估中的使用。
