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构建帕金森网络——来自德国的经验

Building a Parkinson-Network-Experiences from Germany.

作者信息

van Munster Marlena, Tönges Lars, Loewenbrück Kai F, Warnecke Tobias, Eggers Carsten

机构信息

Department of Neurology, University Hospital Marburg, 35033 Marburg, Germany.

Department of Neurology, St. Josef-Hospital, Ruhr-University Bochum, 44801 Bochum, Germany.

出版信息

J Clin Med. 2020 Aug 25;9(9):2743. doi: 10.3390/jcm9092743.

Abstract

Parkinson's disease is a complex neurodegenerative disease that can be best treated with a multi-disciplinary care approach. Building care networks has been shown as a useful tool to facilitate the integration of care services and improve outcomes for patients and care providers. However, experiences and practices relating to building a network are very limited in the field of Parkinson's disease. This paper portrays existing Parkinson networks in Germany. With the help of a standardized template, description of networks and their building-blocks, so-called modules, were collected from all over Germany. Modules were rated in terms of their expected benefit and the required effort when implementing them, with the help of an expert survey. The rating showed that some modules were perceived as more important than others, but all modules were recognized as beneficial for patients and care providers. Overall, the German experience shows that building a Parkinson network facilitates the integration of care and provides a benefit to all stakeholders involved.

摘要

帕金森病是一种复杂的神经退行性疾病,采用多学科护理方法治疗效果最佳。建立护理网络已被证明是促进护理服务整合、改善患者和护理提供者结局的有用工具。然而,在帕金森病领域,与建立网络相关的经验和实践非常有限。本文描绘了德国现有的帕金森病网络。借助标准化模板,从德国各地收集了网络及其组成部分(即所谓的模块)的描述。通过专家调查,对模块在实施时的预期效益和所需努力进行了评级。评级结果表明,一些模块被认为比其他模块更重要,但所有模块都被认为对患者和护理提供者有益。总体而言,德国的经验表明,建立帕金森病网络有助于护理整合,并为所有相关利益者带来益处。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8405/7563415/f1293255b215/jcm-09-02743-g001.jpg

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