Department of Paediatrics and Child Health, Faculty of Medicine and Health Sciences, Desmond Tutu TB Centre, Stellenbosch University, Stellenbosch, South Africa.
Department of Sociology and Social Anthropology, Stellenbosch University, Stellenbosch, South Africa.
Sociol Health Illn. 2021 Jan;43(1):167-185. doi: 10.1111/1467-9566.13208. Epub 2020 Oct 21.
Despite continued development of effective HIV treatment, expanded access to care and advances in prevention modalities, HIV-related stigma persists. We examine how, in the context of a universal HIV-testing and treatment trial in South Africa and Zambia, increased availability of HIV services influenced conceptualisations of HIV. Using qualitative data, we explore people's stigma-related experiences of living in 'intervention' and 'control' study communities. We conducted exploratory data analysis from a qualitative cohort of 150 households in 13 study communities, collected between 2016 and 2018. We found that increased availability of HIV-testing services influenced conceptualisations of HIV as normative (non-exceptional) and the visibility of people living with HIV (PLHIV) in household and community spaces impacted opportunities for stigma. There was a shift in community narratives towards individual responsibility to take up (assumingly) widely available service - for PLHIV to take care of their own health and to prevent onward transmission. Based on empirical data, we show that, despite a growing acceptance of HIV-related testing services, anticipated stigma persists through the mechanism of shifting responsibilisation. To mitigate the responsibilisation of PLHIV, heath implementers need to adapt anti-stigma messaging and especially focus on anticipated stigma.
尽管在艾滋病治疗方面取得了持续进展,艾滋病护理服务的覆盖面不断扩大,预防方法也取得了进展,但艾滋病相关耻辱感仍然存在。我们考察了在南非和赞比亚开展的一项普遍艾滋病检测和治疗试验的背景下,艾滋病服务的可及性增加如何影响了人们对艾滋病的认知。我们使用定性数据,探讨了人们在“干预”和“对照”研究社区中因艾滋病而产生耻辱感的相关经历。我们对 2016 年至 2018 年间在 13 个研究社区中收集的 150 户家庭的定性队列进行了探索性数据分析。我们发现,艾滋病检测服务的可及性增加影响了人们对艾滋病的认知,即艾滋病具有规范性(非例外性),艾滋病毒感染者在家庭和社区空间中的可见度影响了产生耻辱感的机会。社区叙事逐渐转向个人有责任利用(假设)广泛提供的服务——艾滋病毒感染者需要照顾自己的健康并防止进一步传播。根据实证数据,我们表明,尽管人们越来越接受与艾滋病相关的检测服务,但通过责任转移的机制,预期的耻辱感仍然存在。为了减轻艾滋病毒感染者的责任转移,卫生实施者需要调整反耻辱感信息传递,特别是要特别关注预期的耻辱感。