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美国的残疾儿童与新冠疫情

Children with disabilities in the United States and the COVID-19 pandemic.

作者信息

Houtrow Amy, Harris Debbi, Molinero Ashli, Levin-Decanini Tal, Robichaud Christopher

机构信息

Departments of Physical Medicine and Rehabilitation and Pediatrics, University of Pittsburgh School of Medicine, Pittsburgh, PA, USA.

Family Voices of Minnesota, Minneapolis, MN, USA.

出版信息

J Pediatr Rehabil Med. 2020;13(3):415-424. doi: 10.3233/PRM-200769.

Abstract

Children with disabilities are disproportionately impacted by COVID-19 and the containment response. Their caregivers must now adapt to increased stressors such as lack of access to needed therapies, medical supplies, and nursing care. Prior to COVID-19 these families were already marginalized, and this has only worsened during the pandemic. As a vulnerable population, children with disabilities have not been the focus of much discussion during the pandemic, likely because the disease disproportionately impacts older individuals. Nonetheless, children with disabilities should be a focus of evaluation and intervention to mitigate the negative consequences of COVID-19 and the resulting containment strategies. Their needs should be included in future crisis planning, as well. In order to raise awareness of pediatric rehabilitation professionals, health care administrators, policy makers, and advocates, this manuscript provides a discussion of the following topics: the immediate and ongoing impacts on children with disabilities and their families, the ethical concerns and implications of triage protocols for scarce resources that consider disability in their scoring systems, and optimizing medical care and educational needs in the time of COVID.

摘要

残疾儿童受新冠疫情及其防控措施的影响尤为严重。他们的照料者现在必须适应更多的压力源,比如难以获得所需的治疗、医疗用品和护理服务。在新冠疫情之前,这些家庭就已被边缘化,而在疫情期间这种情况愈发恶化。作为弱势群体,残疾儿童在疫情期间并未成为诸多讨论的焦点,这可能是因为该疾病对年长者的影响更为严重。尽管如此,残疾儿童应成为评估和干预的重点,以减轻新冠疫情及其防控策略所带来的负面影响。他们的需求也应纳入未来的危机规划之中。为提高儿科康复专业人员、医疗保健管理人员、政策制定者和倡导者的认识,本手稿对以下主题进行了讨论:对残疾儿童及其家庭的直接和持续影响、在评分系统中考虑残疾因素的稀缺资源分诊方案的伦理问题及影响,以及在新冠疫情期间优化医疗和教育需求。

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