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居家与养老院临终关怀比较:澳大利亚全科医生全国性研究

Comparison of end-of-life care for people living in home settings versus residential aged care facilities: A nationwide study among Australian general practitioners.

机构信息

Xiangya School of Nursing, Central South University, Changsha, China.

School of Population and Global Health, The University of Western Australia, Perth, WA, Australia.

出版信息

Health Soc Care Community. 2022 Jan;30(1):91-101. doi: 10.1111/hsc.13375. Epub 2021 Apr 6.

Abstract

We have little knowledge of differences in end-of-life care between home settings and residential aged care facilities (RACFs) where people spend most of their last year of life. This study aimed to compare end-of-life care between home settings and RACFs from the perspective of Australian general practitioners (GPs). A descriptive study was conducted with 62 GPs from Western Australia, Queensland and Victoria. Participants were asked to provide reports on end-of-life care of decedents in their practice using a validated clinic-based data collection process developed by our team between September 2018 and August 2019. Of the 213 reported expected deaths, 66.2% mainly lived at home in the last year of life. People living at home were more likely to die at a younger age (median 77 vs. 88, p < 0.001), to be male (51.1% vs. 33.3%, p = 0.01) and to die of cancer (53.9% vs. 4.2%, p < 0.001) compared to those in RACFs. There were no significant differences between the two patient groups for seven out of the eight assessed symptoms, except nausea. GPs' perceived roles in caring for patients and levels of their involvement in provision of common palliative care services were comparable between the two groups. The usual accommodation setting was most frequently considered the preferred place of death in both groups. However, more home residents ended up dying in hospital compared to RACF residents. There were significantly higher frequencies of end-of-life discussions (ORs ranged 5.46-9.82 for all topic comparisons) with GPs associated with people living at home versus RACFs. One opportunity for improved care is through promoting greater involvement of GPs in end-of-life discussions with RACF residents and staff. In general, more Australians could potentially remain at home until death if provided with greater access to essential specialist palliative care services and supportive services in home settings.

摘要

我们对居家环境和老年人居住护理机构(RACFs)临终关怀的差异知之甚少,而人们通常会在 RACFs 度过生命的最后一年。本研究旨在从澳大利亚全科医生(GPs)的角度比较居家环境和 RACFs 的临终关怀。这是一项描述性研究,对来自西澳大利亚州、昆士兰州和维多利亚州的 62 名全科医生进行了调查。参与者被要求使用我们团队在 2018 年 9 月至 2019 年 8 月之间开发的经过验证的基于诊所的数据收集流程,报告他们实践中死者的临终关怀情况。在所报告的 213 例预计死亡病例中,66.2%的人在生命的最后一年主要居住在家中。在家中生活的人更有可能在较年轻时去世(中位数 77 岁比 88 岁,p<0.001),更有可能是男性(51.1%比 33.3%,p=0.01),死于癌症(53.9%比 4.2%,p<0.001),而不是在 RACFs 中。在评估的八项症状中,除了恶心之外,有七项症状在两个患者群体之间没有显著差异。在照顾患者的角色和提供常见姑息治疗服务的参与程度方面,两组患者之间没有显著差异。在这两个群体中,通常的住宿环境被认为是最常选择的死亡地点。然而,与 RACF 居民相比,更多的居家居民最终在医院去世。与 RACF 居民相比,与在家中居住的人相比,与全科医生进行临终讨论的频率明显更高(所有主题比较的 OR 范围为 5.46-9.82)。通过促进全科医生更多地参与与 RACF 居民和工作人员的临终讨论,这是改善护理的一个机会。总的来说,如果澳大利亚人在家中获得更多基本的专科姑息治疗服务和支持服务,他们可能会有更多的人有机会在生命结束前留在家中。

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