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我们孩子的 TBI:一位康复工程师的个人经历、技术方法和经验教训。

Our child's TBI: a rehabilitation engineer's personal experience, technological approach, and lessons learned.

机构信息

Department of Mechanical Engineering, The University of Texas at Austin, 204 E. Dean Keeton St. ETC 4.146D, Austin, TX, 78712, USA.

TeVido BioDevices, Austin, TX, USA.

出版信息

J Neuroeng Rehabil. 2021 Apr 7;18(1):59. doi: 10.1186/s12984-021-00862-y.

Abstract

I (JS) am currently a faculty member at The University of Texas at Austin in Mechanical Engineering. My primary research focus is rehabilitation engineering. In May 2020, a week before her fourth birthday, our daughter suffered a severe traumatic brain injury in the early days of the coronavirus pandemic. The purpose of this article is to describe the current state of pediatric neurorehabilitation from technologically-adept parents' first-person perspectives in order to inform and motivate rehabilitation engineering researchers. We describe the medical and personal challenges faced during the aftermath of the accident, the technological approaches to her recovery that my wife (LKS) and I have examined, some of which may be considered beyond standard practice, and the lessons we have absorbed during this period regarding both the state of rehabilitation research and the clinical uptake of rehabilitation technologies. We introduce a set of questions for designers to consider as they create and evaluate new technologies for pediatric rehabilitation.

摘要

我(JS)目前是德克萨斯大学奥斯汀分校机械工程系的一名教师。我的主要研究重点是康复工程。2020 年 5 月,在我们的女儿四岁生日前一周,她在冠状病毒大流行的早期遭受了严重的创伤性脑损伤。本文的目的是从精通技术的父母的第一人称视角描述儿科神经康复的现状,以便为康复工程研究人员提供信息并激发他们的灵感。我们描述了事故发生后的医疗和个人挑战,我妻子(LKS)和我所检查的她康复的技术方法,其中一些方法可能被认为超出了标准做法,以及我们在这段时间内吸收的关于康复研究现状和康复技术的临床应用的经验教训。我们提出了一组问题供设计师在创建和评估儿科康复新技术时考虑。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9332/8028802/76bee415a295/12984_2021_862_Fig1_HTML.jpg

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