Department of Community Mental Health, University of Haifa, Haifa, Israel.
Aging Ment Health. 2022 Aug;26(8):1597-1603. doi: 10.1080/13607863.2021.1916881. Epub 2021 Apr 27.
Many studies have attempted to identify the factors that are associated with caregiver burden among family caregivers of people with Alzheimer's disease (AD), because of its plethora of negative consequences. One unique factor that has been investigated recently is family stigma. However, the path leading from family stigma to caregiver burden has not been thoroughly studied. Hence, this study had two main objectives. The first was to examine whether family stigma was a predictor of caregiver burden among Israeli Arab family caregivers of a person with AD. The second was to examine the interplay of family stigma and caregiver burden with coping strategies and social support.
Structured face-to-face interviews were conducted with 175 Israeli Arab family caregivers (adult children and spouses) of elderly people with AD (87.4% female; 71.4% adult children; mean age = 54.28).
Overall, the participants reported moderate levels of caregiver burden and family stigma. Additionally, as expected, family stigma made a unique - although modest - contribution to the explanation of caregiver burden. Whereas neither problem-focused coping nor emotion-focused coping played a significant role in mediating the relation between family stigma and caregiving burden, social support did mediate the relation between these variables.
Our findings reveal how social support is important as a specific way to reduce the impact of family stigma on caregiver burden.
由于阿尔茨海默病(AD)患者家庭成员照顾者负担带来的诸多负面影响,许多研究试图确定与照顾者负担相关的因素。最近,一个独特的研究因素是家庭耻辱感。然而,家庭耻辱感导致照顾者负担的路径尚未得到充分研究。因此,本研究有两个主要目的。第一个目的是检验家庭耻辱感是否是以色列阿拉伯裔 AD 患者家庭成员照顾者负担的预测因素。第二个目的是检验家庭耻辱感与照顾者负担、应对策略和社会支持之间的相互作用。
对 175 名以色列阿拉伯裔 AD 老年患者的家庭成员照顾者(女性占 87.4%,成年子女占 71.4%,平均年龄=54.28 岁)进行了面对面的结构化访谈。
总体而言,参与者报告了中度的照顾者负担和家庭耻辱感。此外,正如预期的那样,家庭耻辱感对照顾者负担的解释有独特的作用(尽管作用不大)。问题焦点应对和情绪焦点应对都没有在家庭耻辱感和照顾者负担之间的关系中发挥显著作用,而社会支持在这些变量之间的关系中起到了中介作用。
我们的研究结果揭示了社会支持作为减轻家庭耻辱感对照顾者负担影响的一种具体方式的重要性。