Schuelke Taryn, Crawford Claire, Kentor Rachel, Eppelheimer Heather, Chipriano Cristina, Springmeyer Kirstin, Shukraft Allison, Hill Malinda
Department of Pediatric Palliative Care, Texas Children's Hospital, 6621 Fannin St., Houston, TX 77030, USA.
Department of Pediatrics, Baylor College of Medicine, Psychology Service, Texas Children's Hospital, 6701 Fannin St., Houston, TX 77030, USA.
Children (Basel). 2021 Apr 4;8(4):278. doi: 10.3390/children8040278.
Grief support changes as more is learned from current grief theory and research. The authors provide a comprehensive overview of current grief support as it relates to Pediatric Palliative Care (PPC). The following aspects of grief are addressed: (1) anticipatory grief: the nondeath losses that occur with a complex and chronic illness, as well as the time leading up to death; (2) grief around the time of death: the intense and sacred experience of companioning with a dying child; (3) grief after death: supporting bereavement and mourning through programing and other methods; (4) innovative approaches: the future of grief support. The contents of this article are meant to support and educate programs currently providing grief services and those aiming to begin the meaningful work of grief support.
随着从当前悲伤理论和研究中获得的知识越来越多,悲伤支持也在发生变化。作者全面概述了当前与儿童姑息治疗(PPC)相关的悲伤支持。本文探讨了悲伤的以下几个方面:(1)预期性悲伤:复杂慢性病所带来的非死亡损失,以及临近死亡的时期;(2)死亡时的悲伤:陪伴垂死儿童的强烈而神圣的经历;(3)死亡后的悲伤:通过规划和其他方法支持丧亲之痛和哀悼;(4)创新方法:悲伤支持的未来。本文内容旨在支持和教育目前提供悲伤服务的项目以及那些旨在开展有意义的悲伤支持工作的项目。