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Living as a family with a child on home mechanical ventilation and personal care assistants-A burdensome impact on family life.

作者信息

Bjerregaard Alrø Anette, Klitnaes Charlotte, Dahl Rossau Charlotte, Dreyer Pia

机构信息

Department of Intensive Care, Aarhus University Hospital, Aarhus N, Denmark.

Institute of Public Health, Section of Nursing, Aarhus University, Aarhus C, Denmark.

出版信息

Nurs Open. 2021 Nov;8(6):3340-3348. doi: 10.1002/nop2.879. Epub 2021 May 5.

Abstract
摘要

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本文引用的文献

2
'I'm almost never sick': Everyday life experiences of children and young people with home mechanical ventilation.
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Quality of life in home-ventilated children and their families.
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Personal care assistants' experiences of caring for people on home mechanical ventilation.
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Long-term ventilation in children: ten years later.
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Parents' experiences and views of caring for a child with a tracheostomy: a literature review.
Int J Pediatr Otorhinolaryngol. 2013 Oct;77(10):1630-4. doi: 10.1016/j.ijporl.2013.07.020. Epub 2013 Aug 1.
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The impact of technology dependence on children and their families.
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