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通过技术支持痴呆症患者的身份认同和人际关系:一项定性访谈研究。

Supporting identity and relationships amongst people with dementia through the use of technology: a qualitative interview study.

机构信息

Department of Neuromedicine and Movement Science, Norwegian University of Science and Technology, NTNU, Trondheim, Norway.

Departamento de Ação Social e Saúde (Department of Social Action and Health), Santa Casa Da Misericórdia De Lisboa (SCML), Lisbon, Portugal.

出版信息

Int J Qual Stud Health Well-being. 2021 Dec;16(1):1920349. doi: 10.1080/17482631.2021.1920349.

Abstract

Meaningful activities in dementia care can promote the co-construction of narrative identity in caregiving relationships, helping to preserve the sense of self in people with dementia.: Informed by symbolic interactionism and Deweyan transactionalism, the aim of this study was to develop a transactional model of how narrative identity and relationships are promoted through the use of a new technological solution, SENSE-GARDEN, that uses digital technologies and multisensory stimuli to facilitate individualized, meaningful activities.: We conducted a qualitative interview study to explore the experiences of people with moderate to advanced dementia and their caregivers in Norway and Portugal. After using SENSE-GARDEN for 12-16 weeks, 20 participants (7 persons with dementia and 13 caregivers) were interviewed. The interviews were analysed using reflexive thematic analysis.: Three themes were generated: openness, learning, and connection. Findings suggest that SENSE-GARDEN can stimulate emotional experiences, preserve narrative identity, and foster interpersonal relationships. These findings are illustrated through a transactional model.: This study highlights the complex multitude of factors affecting person-environment interactions in which narrative identity and relationships are constructed. To better understand these factors, future work should adopt a holistic approach to studying new methods of creating meaningful activities in dementia care.

摘要

在痴呆症护理中开展有意义的活动可以促进照护关系中叙事身份的共同构建,有助于保留痴呆症患者的自我意识。本研究以符号互动论和杜威的交互作用论为理论基础,旨在构建一个关于如何通过使用新技术解决方案 SENSE-GARDEN 来促进叙事身份和关系的交互模型,该技术使用数字技术和多感官刺激来促进个性化的有意义的活动。我们在挪威和葡萄牙进行了一项定性访谈研究,以探讨中重度痴呆症患者及其照顾者的体验。在使用 SENSE-GARDEN 12-16 周后,对 20 名参与者(7 名痴呆症患者和 13 名照顾者)进行了访谈。使用反思性主题分析对访谈进行了分析。产生了三个主题:开放性、学习和连接。研究结果表明,SENSE-GARDEN 可以刺激情感体验、保护叙事身份并促进人际关系。通过一个交互模型说明了这些发现。本研究强调了影响叙事身份和关系构建的人与环境相互作用的复杂多样的因素。为了更好地理解这些因素,未来的工作应该采用整体方法来研究在痴呆症护理中创建有意义的活动的新方法。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e139/8118425/6843b78b0e05/ZQHW_A_1920349_F0001_OC.jpg

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