Peninsula Childhood Disability Research Unit (PenCRU) and National Institute of Health Research Applied Research Collaboration for the South West Peninsula (penARC), University of Exeter Medical School, University of Exeter, Exeter, UK.
Sheffield Children's NHS Foundation Trust, Sheffield, UK.
Health Expect. 2021 Aug;24(4):1433-1442. doi: 10.1111/hex.13283. Epub 2021 May 28.
Parents of disabled children report poorer inpatient experiences when they stay in hospital, and some staff report finding communicating with disabled children challenging. This study tested the feasibility of implementing a training package for staff on paediatric wards to improve communication with disabled children, especially those with communication difficulties, and their families. The package was developed with parent carers and clinicians, and comprises a manual, a video of parent carers talking about real experiences, discussion points and local resources. The 50-minutes training is intended for in-house delivery by local facilitators.
Thirteen training sessions were delivered in paediatric wards across four hospitals in England, totalling 123 staff who took part. Participants completed questionnaires before (n = 109) and after (n = 36) training, and a sample of champions (senior clinicians) and facilitators were interviewed at the end of the study.
Facilitators found the training easy to deliver, and participants felt they took away important messages to improve their practice. After the training, further changes were reported at an organizational level, including offering further training and reviewing practices.
This study provides supporting evidence for the implementation of a low-cost, minimal-resource training package to support staff communication with children and their families in hospitals. It provides promising indication of impact on behavioural change at the individual and organizational level.
Parent carers identified the need and helped to develop the training, including featuring in the training video. They were also consulted throughout the study on research design, delivery and reporting.
残疾儿童的家长报告称,他们在住院期间的住院体验较差,一些医护人员报告称与残疾儿童沟通具有挑战性。本研究旨在测试为儿科病房的医护人员实施一套培训方案的可行性,以改善他们与残疾儿童(尤其是那些存在沟通困难的儿童)及其家庭的沟通。该方案由家长和临床医生共同制定,包括手册、家长讲述真实经历的视频、讨论要点和当地资源。50 分钟的培训旨在由当地协调员进行内部授课。
在英格兰的四所医院的儿科病房共进行了 13 次培训课程,共有 123 名医护人员参加。参与者在培训前后(n=109)完成了问卷调查,研究结束时对部分(n=36)参与者和高级临床医生以及协调员进行了访谈。
协调员发现培训易于实施,参与者认为他们获得了改进实践的重要信息。培训后,在组织层面上还报告了进一步的变化,包括提供进一步的培训和审查实践。
本研究为实施低成本、低资源的培训方案以支持医院内医护人员与儿童及其家庭的沟通提供了支持性证据。它为个人和组织层面的行为改变提供了有希望的迹象。
家长确定了需求并帮助开发了培训,包括在培训视频中出镜。他们还在研究设计、实施和报告过程中提供了咨询。