Allen Jayme D, Shukla Riddhi, Baker Rebecca, Slaven James E, Moody Karen
Department of Pediatrics, Riley Hospital for Children at Indiana University, Indianapolis, Indiana, USA.
Indiana University School of Nursing, Indianapolis, Indiana, USA.
Palliat Med Rep. 2021 Apr 16;2(1):93-100. doi: 10.1089/pmr.2020.0121. eCollection 2021.
The primary objective was to evaluate the efficacy of a weekly palliative care-guided, case-based discussion of high-risk infants on Neonatal Intensive Care Unit (NICU) physician (MD) and Advanced Practice Provider (APP) perceptions of pediatric palliative care (PPC). The study setting was a level IV academic NICU in a United States midwestern children's hospital. A pre/post design was used to evaluate the effects of a weekly palliative care-guided, case-based discussion of high-risk infants on neonatology providers' (MD and APP) perspectives of palliative and end-of-life care in the NICU using a previously published survey instrument. Surveys were completed at baseline and after 12 months of implementation. Data was analyzed with a Wilcoxon Signed Rank test with significance set at < 0.05. Thirty-one providers (13 APPs and 18 MDs) completed both pre- and post-intervention surveys. Post-intervention, providers were more likely to endorse that they "are comfortable with PPC", "feel comfortable teaching PPC to trainees", "feel confident handling end-of-life care", "have time to discuss PPC", and "were satisfied with the transition to end-of-life care for their most recent patient". They also were more likely to report, "families' perception of burden is relevant when making ethical decisions", that "parents are involved in decisions regarding palliative care", and that their "institution is supportive of palliative care." (-values < 0.05 for all). NICU provider perceptions of palliative care can be improved through the implementation of a case-based interdisciplinary conference that emphasizes palliative care domains in the context of Neonatal ICU care.
主要目的是评估每周一次以姑息治疗为导向、基于案例讨论高危婴儿对新生儿重症监护病房(NICU)医生(MD)和高级执业提供者(APP)对儿科姑息治疗(PPC)看法的效果。研究地点是美国中西部一家儿童医院的四级学术NICU。采用前后设计,使用先前发表的调查工具,评估每周一次以姑息治疗为导向、基于案例讨论高危婴儿对新生儿科提供者(MD和APP)在NICU中对姑息治疗和临终关怀看法的影响。在基线和实施12个月后完成调查。数据采用Wilcoxon符号秩检验进行分析,显著性设定为<0.05。31名提供者(13名APP和18名MD)完成了干预前和干预后的调查。干预后,提供者更有可能认可他们“对PPC感到满意”、“对向受训人员教授PPC感到满意”、“对处理临终关怀感到自信”、“有时间讨论PPC”以及“对最近患者向临终关怀的过渡感到满意”。他们也更有可能报告“在做出伦理决策时家庭的负担感知是相关的”、“父母参与姑息治疗决策”以及“他们的机构支持姑息治疗”(所有p值<0.05)。通过实施强调新生儿重症监护病房护理背景下姑息治疗领域的基于案例的跨学科会议,可以改善NICU提供者对姑息治疗的看法。