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一种社区参与的方法,用于考察韩裔移民家庭获得自闭症服务的障碍和促进因素。

A community-engaged approach to examining barriers and facilitators to accessing autism services in Korean immigrant families.

机构信息

Simon Fraser University, Canada.

Here and Now Community Society, Canada.

出版信息

Autism. 2022 Feb;26(2):525-537. doi: 10.1177/13623613211034067. Epub 2021 Jul 21.

Abstract

Perceptions and experiences of culturally and linguistically diverse groups in accessing autism services in Canada are extremely limited. Thus, this study partnered with a community member to explore Korean immigrant parents' perceptions of barriers and facilitators to accessing autism services in British Columbia, Canada. Interviews were conducted with 20 Korean parents of autistic children. Barriers and facilitators at the system, provider, and family/cultural level were identified. Barriers at the system level included delays and waitlists for services, and ineffective school policies to address child behavioral challenges. At the provider level, barriers included a lack of qualified professionals, negative attitudes, and lack of guidance navigating services. For family/cultural-related barriers, these included language and communication difficulties, out-of-pocket costs, and stigma impeded service access. Facilitators at the system level included family-centered care and prioritization of mental health supports. At the provider level, strengths included culturally competent and bilingual professionals. The family/cultural-related facilitators identified were informal support networks, characteristics of the parent, and connections to cultural community organizations. The findings emphasize the need to understand and consider diverse experiences, preferences, and values in the design and provision of autism services for families and their children.

摘要

在加拿大,文化和语言多样化群体在获得自闭症服务方面的看法和体验极为有限。因此,本研究与一名社区成员合作,探索加拿大不列颠哥伦比亚省韩裔移民父母对获得自闭症服务的障碍和促进因素的看法。对 20 名自闭症儿童的韩裔父母进行了访谈。确定了系统、提供者和家庭/文化层面的障碍和促进因素。系统层面的障碍包括服务的延迟和等待名单,以及解决儿童行为挑战的学校政策无效。在提供者层面,障碍包括缺乏合格的专业人员、负面态度以及缺乏服务指导。在家庭/文化相关的障碍方面,这些障碍包括语言和沟通困难、自费和服务障碍的污名化。系统层面的促进因素包括以家庭为中心的护理和心理健康支持的优先级。在提供者层面,优势包括文化能力和双语专业人员。确定的家庭/文化相关促进因素包括非正式支持网络、父母的特点以及与文化社区组织的联系。研究结果强调,在为家庭及其子女设计和提供自闭症服务时,需要了解和考虑不同的体验、偏好和价值观。

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