Department of Social Medicine, Federal University of Espírito Santo, CEP 29.040-090, Vitória-ES, Brazil.
Postgraduate Programme in Infectious Diseases, Federal University of Espírito Santo, CEP 29.040-090, Vitória-ES, Brazil.
Trans R Soc Trop Med Hyg. 2021 Sep 3;115(9):1086-1087. doi: 10.1093/trstmh/trab115.
Brazil has been at the forefront in replacing the stigmatising term 'leprosy' with the non-pejorative alternative 'Hansen's disease' ('hanseníase'), with use of the former word prohibited by law since 1995. This change followed decades of advocacy, including by civil society organisations representing people affected by the disease. A survey of people affected by Hansen's disease in Brazil found that 111/112 respondents preferred the alternative term, supporting the view that consideration of non-stigmatising terminology that respects the wishes of people affected by the disease should be part of the WHO Global Leprosy (Hansen's disease) Strategy to achieve 'zero stigma' by 2030.
巴西一直走在前列,用非贬义的替代术语“汉森病”(“ hanseníase”)取代带有污名化色彩的术语“麻风病”(“leprosy”),自 1995 年以来,法律禁止使用前者。这一变化是经过几十年的倡导,包括代表受该病影响的民间社会组织的倡导才实现的。巴西汉森病患者调查发现,111/112 名受访者更喜欢替代术语,这支持了这样一种观点,即考虑使用非污名化且尊重受该病影响人群意愿的术语,应成为世卫组织全球麻风病(汉森病)战略的一部分,以实现到 2030 年“零歧视”的目标。