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开创特应性皮炎全球最佳实践:特应性皮炎护理质量倡议的结果。

Pioneering global best practices in atopic dermatitis: results from the atopic dermatitis quality of care initiative.

机构信息

Department of Dermatology, Mount Sinai School of Medicine, New York, NY, USA.

Department of Allergy and Clinical Immunology, Centre Hospitalier Universitaire, Lyon, France.

出版信息

Clin Exp Dermatol. 2022 Feb;47(2):303-311. doi: 10.1111/ced.14880. Epub 2021 Sep 27.

Abstract

BACKGROUND

Atopic dermatitis (AD) is a chronic inflammatory skin disease characterized by unrelenting pruritus and recurrent eczematous lesions. It affects up to 15% of children and adolescents and up to 5% of adults, and confers a high and multifactorial burden to patients, families and society. With increasing awareness of this substantial burden, AD has become a priority for healthcare systems.

AIM

The Atopic Dermatitis Quality of Care (ADQoC) initiative set out to describe good practices for addressing the challenges that impede the management of AD.

METHODS

The initiative carried out a literature review and surveyed 32 expert care centres, catalogued findings, and analysed and elucidated global challenges to AD care along with good practice implementations that can address them.

RESULTS

The four challenges to quality care for AD are: (i) misconceptions about AD; (ii) delayed referral and access to AD specialists; (iii) poor patient access to AD treatments and poor adherence to medications; and (iv) managing the complexity of AD and its comorbidities. The initiative highlighted 5 of 10 good practice implementations as high priority for any AD care centre to focus on: (i) clinical assessment and diagnosis; (ii) a structured multidisciplinary care team; (iii) monitoring and evaluating care quality; (iv) patient education and communication; and (v) collaboration and exchange with patient groups.

CONCLUSION

These implementations can provide benefits for patients, healthcare providers and the healthcare system. They directly contribute to the efficacy of treatment, improved healthcare provider efficiency, improved education for patients and healthcare providers, and improved costs to healthcare systems. The initiative was launched on https://atopicdermatitiscare.kpmg.co.uk/ to provide an easy-to-use educational platform.

摘要

背景

特应性皮炎(AD)是一种慢性炎症性皮肤病,其特征为持续瘙痒和反复出现湿疹样皮损。它影响多达 15%的儿童和青少年,以及多达 5%的成年人,给患者、家庭和社会带来了高且多方面的负担。随着对这一巨大负担的认识不断提高,AD 已成为医疗保健系统的优先事项。

目的

特应性皮炎护理质量(ADQoC)倡议旨在描述解决阻碍 AD 管理的挑战的良好做法。

方法

该倡议进行了文献回顾,并调查了 32 个专家护理中心,对发现进行了分类,并分析和阐明了 AD 护理方面的全球挑战,以及可以解决这些挑战的良好实践实施情况。

结果

AD 护理质量的四个挑战是:(i)对 AD 的误解;(ii)延迟转诊和获得 AD 专家的机会;(iii)患者获得 AD 治疗的机会差和药物依从性差;(iv)管理 AD 的复杂性及其合并症。该倡议强调了 10 项良好实践实施中的 5 项作为任何 AD 护理中心的重点:(i)临床评估和诊断;(ii)结构化的多学科护理团队;(iii)监测和评估护理质量;(iv)患者教育和沟通;(v)与患者团体的合作和交流。

结论

这些实施可以为患者、医疗保健提供者和医疗保健系统带来益处。它们直接有助于提高治疗效果、提高医疗保健提供者的效率、提高患者和医疗保健提供者的教育水平,以及降低医疗保健系统的成本。该倡议已在 https://atopicdermatitiscare.kpmg.co.uk/ 上启动,提供了一个易于使用的教育平台。

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