Langer H E, Birth U
Abteilung für Krankheiten der Bewegungsorgane und des Stoffwechsels, Medizinischen Hochschule Hannover.
Z Rheumatol. 1987 Nov-Dec;46(6):333-8.
In our outpatient rheumatology unit, nearly all patients with rheumatoid arthritis (n = 412, responder rate 89%) were asked for their concepts of patient information and what they thought the aims of a patient education program should be. The patients preferred information about biomedical and practical aspects of their disease more than talking about psychosocial problems. In the same way, from a patient education program they wanted cognitive knowledge and practical help for the daily coping with the disease more than psychological help. Considering the results of the interviews, we developed an educational program for outpatients with rheumatoid arthritis. Its organization and curriculum reflect didactic and methodical aspects of patient information in a chronic rheumatic disease.
在我们的门诊风湿病科,几乎所有类风湿关节炎患者(n = 412,应答率89%)都被询问了他们对患者信息的看法以及他们认为患者教育项目的目标应该是什么。与谈论心理社会问题相比,患者更喜欢关于其疾病生物医学和实际方面的信息。同样,从患者教育项目中,他们更希望获得应对疾病日常所需的认知知识和实际帮助,而非心理帮助。考虑到访谈结果,我们为类风湿关节炎门诊患者制定了一个教育项目。其组织和课程反映了慢性风湿性疾病患者信息的教学和方法方面。