Perelman School of Medicine, University of Pennsylvania, Elkins Park, Pennsylvania, USA.
J Palliat Med. 2022 Mar;25(3):413-420. doi: 10.1089/jpm.2021.0235. Epub 2021 Sep 9.
Lay health workers (LHWs) engaging African Americans in conversations about advance care planning (ACP) often have felt unprepared for the challenges of communicating with patients as they approach the end of life. We developed a church-based training curriculum, LIGHT (Listening, Identifying, Guiding, Helping, Translating), in response to this need. To evaluate the LIGHT Curriculum by assessing its impact on knowledge, beliefs and attitudes, and self-efficacy of the learners; describing their assessment of the classroom component of the training; and describing their visit activities, and perceptions derived during client visits. prospective, descriptive, pre- and post-training evaluation. Thirty-seven LHWs (Comfort Care Supporters [CCSs]) from three African American Churches (United States). Measurements: knowledge, beliefs and attitudes, assessment of classroom training, self-efficacy, visit activities, and perceptions. Pre-to-post knowledge scores (range 0-26) increased by a mean of 5.23, < 0.0001. Agreement with favorable beliefs about palliative and hospice care (HC) did not change significantly post-training. Disagreement with unfavorable beliefs about hospice increased, most notably, the belief that hospice means a place where people go to die (43% to 87%, = 0.003) and HC means giving up (77% to 93%, = 0.03). Post-training, 94% of the CCSs felt prepared to function in their roles. The CCSs who visited clients demonstrated the ability to engage clients and families in conversations about issues important to ACP, end-of-life decision making and care, and the ability to identify relevant benefits and challenges of their roles. LHWs, trained using the LIGHT Curriculum, can acquire the knowledge and self-efficacy necessary to support African American clients with ACP, end-of-life decision making, and end-of-life care.
初级卫生保健工作者(LHW)在与非裔美国人就预先医疗指示(ACP)进行交谈时,常常感到没有准备好应对患者在接近生命终点时的沟通挑战。为了应对这一需求,我们开发了一个基于教堂的培训课程,即 LIGHT(倾听、识别、引导、帮助、翻译)。为了评估 LIGHT 课程对学习者的知识、信念和态度以及自我效能的影响;描述他们对培训课堂部分的评估;并描述他们在客户访问期间的活动和得出的看法。前瞻性、描述性、培训前和培训后评估。来自三所非裔美国教堂(美国)的 37 名初级卫生保健工作者(舒适关怀支持者)。测量:知识、信念和态度、课堂培训评估、自我效能、访问活动和看法。从 0 到 26 分的知识评分在培训前到培训后平均增加了 5.23 分, < 0.0001。对姑息治疗和临终关怀(HC)的有利信念的一致性在培训后没有显著变化。对 Hospice 不利信念的不一致性有所增加,最显著的是 Hospice 意味着人们去世的地方(43%到 87%, = 0.003)和 HC 意味着放弃(77%到 93%, = 0.03)。培训后,94%的 CCS 认为自己已经准备好履行职责。访问客户的 CCS 展示了与客户和家庭就 ACP、临终决策和护理以及他们角色的相关利益和挑战进行对话的能力,以及识别相关利益和挑战的能力。经过 LIGHT 课程培训的初级卫生保健工作者可以获得支持非裔美国客户进行 ACP、临终决策和临终护理所需的知识和自我效能。