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类风湿关节炎患者及其重要他人日常生活中支持的对偶探索。

A dyadic exploration of support in everyday life of persons with RA and their significant others.

机构信息

Department of Health, Medicine and Caring Sciences, Linköping University, Norrköping, Sweden.

Department of Activity and Health and Department of Health, Medicine and Caring Sciences, Linköping University, Linköping, Sweden.

出版信息

Scand J Occup Ther. 2023 Jul;30(5):616-627. doi: 10.1080/11038128.2021.2007997. Epub 2021 Nov 30.

Abstract

BACKGROUND

Support from significant others is important for participation in everyday life for persons with rheumatoid arthritis (RA). Meanwhile, significant others also experience limitations.

AIMS

To explore how support is expressed by persons with RA and significant others, and how support relates to participation in everyday life of persons with RA.

MATERIAL AND METHODS

Sixteen persons with RA and their significant others participated in individual semi-structured interviews. The material was analyzed using dyadic analysis.

RESULTS

Persons with RA and significant others reported that RA and support had become , especially . The reciprocal were also expressed as imperative. Also, support from and facilitated everyday life.

CONCLUSIONS

Significant others and the support they give are prominent factors and facilitators in everyday life of persons with RA. Concurrently, the support persons with RA provide is important, along with support from outside of the dyads.

SIGNIFICANCE

The results indicate that the interaction between persons with RA and the social environment is central to gain insight into how support should be provided for optimal participation in everyday life. Significant others can preferably be more involved in the rehabilitation process.

摘要

背景

对于类风湿关节炎(RA)患者来说,来自重要他人的支持对于参与日常生活很重要。与此同时,重要他人也会感到受限。

目的

探索 RA 患者和重要他人如何表达支持,以及支持如何与 RA 患者参与日常生活相关。

材料与方法

16 名 RA 患者及其重要他人参与了个体半结构化访谈。使用对偶分析对材料进行分析。

结果

RA 患者和重要他人报告说,RA 和支持已经变得,特别是。相互的支持也被表达为强制性的。此外,来自和的支持促进了日常生活。

结论

重要他人及其提供的支持是 RA 患者日常生活中的突出因素和促进因素。同时,RA 患者提供的支持以及来自对偶之外的支持也很重要。

意义

结果表明,RA 患者与社会环境之间的相互作用是深入了解如何提供支持以实现最佳日常生活参与的核心。重要他人最好能更多地参与康复过程。

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