MJHS Institute for Innovation in Palliative Care, 39 Broadway, 3rd Floor, New York, NY, 10006, USA.
Department of Family and Social Medicine, Albert Einstein College of Medicine, Bronx, NY, USA.
Curr Treat Options Oncol. 2022 May;23(5):658-667. doi: 10.1007/s11864-022-00957-1. Epub 2022 Mar 22.
Specialists in palliative care view the family meeting as a means to engage patients and their families in a serious illness discussion that may clarify the values of patients and caregivers, provide information, determine care preferences, and identify sources of illness-related distress and burden. The family meeting is considered the best practice for achieving patient- and family-centered care in palliative care. Although studies of the family meeting are limited, those extant suggest that these interventions may reduce caregiver distress, mitigate the perception of unmet needs, prepare family members for caregiving, and improve bereavement outcomes. The experience of palliative care specialists further suggests that the family meeting may reinforce the therapeutic alliance with families, promote consensus, and reduce the need for ad hoc meetings. Physician satisfaction may be enhanced when the treatment plan includes the opportunity to show empathy and see the family's perspective-core elements of the clinical approach to the family meeting. In the oncology setting, the potential to achieve these positive outcomes supports the integration of the family meeting into practice. Clinical skills for the planning and running of family meetings should be promoted with consideration of a standardized protocol for routine family meetings at critical points during the illness and its treatment using an interdisciplinary team. Further research is needed to refine understanding of the indications for the family meeting and determine the optimal timing, structure, and staffing models. Outcome studies employing validated measures are needed to better characterize the impact of family meetings on patient and family distress and on treatment outcomes. Although better evidence is needed to guide the future integration of the family meeting into oncology practice, current best practices can be recommended based on available data and the extensive observations of palliative care specialists.
姑息治疗专家认为,家庭会议是一种让患者及其家属参与严重疾病讨论的方式,这种讨论可以澄清患者和护理人员的价值观,提供信息,确定护理偏好,并确定与疾病相关的痛苦和负担的来源。家庭会议被认为是姑息治疗中实现以患者和家庭为中心的护理的最佳实践。尽管对家庭会议的研究有限,但现有的研究表明,这些干预措施可能会减轻护理人员的痛苦,减轻未满足的需求感,使家庭成员为护理做好准备,并改善丧亲结局。姑息治疗专家的经验还表明,家庭会议可能会加强与家庭的治疗联盟,促进共识,并减少临时会议的需求。当治疗计划包括有机会表现出同理心并看到家庭的观点时,医生的满意度可能会提高,而这些观点是家庭会议临床方法的核心要素。在肿瘤学环境中,实现这些积极结果的潜力支持将家庭会议纳入实践。应该推广规划和管理家庭会议的临床技能,并考虑在疾病及其治疗过程中的关键时间点使用跨学科团队为常规家庭会议制定标准化协议。需要进一步的研究来完善对家庭会议适应症的理解,并确定最佳的时间安排、结构和人员配备模式。需要采用经过验证的衡量标准的结果研究来更好地描述家庭会议对患者和家庭痛苦以及治疗结果的影响。尽管需要更好的证据来指导未来将家庭会议纳入肿瘤学实践,但可以根据现有数据和姑息治疗专家的广泛观察结果推荐当前的最佳实践。