Crompton Catherine J, Hallett Sonny, McAuliffe Christine, Stanfield Andrew C, Fletcher-Watson Sue
Patrick Wild Centre, Division of Psychiatry, Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, United Kingdom.
Salvesen Mindroom Research Centre, University of Edinburgh, Edinburgh, United Kingdom.
Front Psychol. 2022 Mar 7;13:831628. doi: 10.3389/fpsyg.2022.831628. eCollection 2022.
Receiving a diagnosis of autism in adulthood can be a life changing event, impacting identity, relationships, and mental health. A lack of post-diagnostic support has been highlighted by autistic adults, their allies, clinicians, and service providers. It can be a source of distress for autistic adults, reinforcing feelings of social isolation and rejection. Peer support could be a cost-effective, flexible, and sustainable model to provide community-based support for autistic adults. However, there is little research on the value of peer support, despite calls from the autistic community. This qualitative study explored autistic experiences and needs post-diagnosis, identifying specific ways that peer support may benefit them, and exploring the limitations of peer support. Twelve autistic adults who had all received an autism diagnosis in adulthood completed a semi-structured interview focussing on the diagnostic experience, post-diagnostic support needed and provided, engagement with the autistic community, and post-diagnostic peer support. Thematic analysis of interview transcripts resulted in four themes: (1) Mismatch in support needed and provided; (2) Community connection; (3) Flexible and personalised support; and (4) Sustainability. Participants indicated that peer support may be a useful mechanism to support autistic adults' post-diagnosis and offers unique opportunities not available through other support channels. Though informal peer support exists, it could be more sustainable and effective if well-supported and funded.
成年后被诊断为自闭症可能是改变人生的事件,会影响身份认同、人际关系和心理健康。自闭症成年人、他们的盟友、临床医生和服务提供者都强调了缺乏诊断后支持的问题。这可能成为自闭症成年人痛苦的根源,加剧他们的社会孤立感和被排斥感。同伴支持可能是一种具有成本效益、灵活且可持续的模式,可为自闭症成年人提供基于社区的支持。然而,尽管自闭症群体有所呼吁,但关于同伴支持价值的研究却很少。这项定性研究探讨了自闭症患者诊断后的经历和需求,确定了同伴支持可能使他们受益的具体方式,并探讨了同伴支持的局限性。12名成年后被诊断为自闭症的成年人完成了一次半结构化访谈,重点关注诊断经历、所需和所提供的诊断后支持、与自闭症群体的接触以及诊断后的同伴支持。对访谈记录的主题分析得出了四个主题:(1) 所需支持与所提供支持的不匹配;(2) 社区联系;(3) 灵活且个性化的支持;(4) 可持续性。参与者表示,同伴支持可能是支持自闭症成年人诊断后的有用机制,并提供了其他支持渠道所没有的独特机会。虽然存在非正式的同伴支持,但如果得到充分支持和资金,它可能会更具可持续性和有效性。