中国国家癌症数据联动平台：设计、方法与应用
National Cancer Data Linkage Platform of China: Design, Methods, and Application.
作者信息
Zeng Hongmei, Liu Yunning, Wang Lijun, Yin Peng, Wang Baohua, Fu Ruiying, Ran Xianhui, Zheng Rongshou, Zhang Siwei, Liu Jiangmei, You Jinling, Sun Kexin, Wang Shaoming, Li Li, Chen Ru, Wei Wenqiang, Zhou Maigeng, Wu Jing, He Jie
机构信息
National Cancer Center/National Clinical Research Center for Cancer/Cancer Hospital, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing, China.
National Center for Chronic and Non-communicable Disease Control and Prevention, China CDC, Beijing, China.
出版信息
China CDC Wkly. 2022 Apr 1;4(13):271-275. doi: 10.46234/ccdcw2022.068.
BACKGROUND
The National Cancer Center (NCC) and China CDC cooperatively designed a National Cancer Data Linkage (NCDL) Platform to fulfill the task of sharing cancer outcome data through an automatic web-based system.
METHODS
NCC and China CDC established a web-based NCDL Platform to link death information from China CDC with the cancer database from NCC. Overall, 76,708 cancer patients' data were analyzed to assess the feasibility and match rate of the NCDL Platform for 7 major cancers.
RESULTS
The function of the platform includes a data application and approval system, data linkage module, and results visualization system. Through the platform, 38.9% cases were identified as deaths cases from the NCDL Platform in the first 3 years after cancer diagnosis. The linkage rate was highest in liver cancer and lowest in breast cancer.
CONCLUSIONS
The NCDL Platform provides a powerful and efficient way to link national vital statistics with national cancer programs' data. Expanding cancer outcome data linkage may not only improve data collection efficiency, but also improve data use.
背景
国家癌症中心（NCC）与中国疾病预防控制中心（China CDC）合作设计了一个国家癌症数据链接（NCDL）平台，以通过基于网络的自动系统完成癌症结局数据共享任务。
方法
国家癌症中心和中国疾病预防控制中心建立了一个基于网络的NCDL平台，将中国疾病预防控制中心的死亡信息与国家癌症中心的癌症数据库相链接。总共分析了76708例癌症患者的数据，以评估NCDL平台对7种主要癌症的可行性和匹配率。
结果
该平台的功能包括数据应用与审批系统、数据链接模块和结果可视化系统。通过该平台，在癌症诊断后的前3年中，38.9%的病例被确定为NCDL平台上的死亡病例。肝癌的链接率最高，乳腺癌的链接率最低。
结论
NCDL平台提供了一种强大而高效的方式，将国家人口统计数据与国家癌症项目的数据相链接。扩大癌症结局数据链接不仅可以提高数据收集效率，还可以改善数据利用。
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