Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA 30322, USA.
School of Medicine, Emory University, Atlanta, GA 30322, USA.
Int J Environ Res Public Health. 2022 Apr 8;19(8):4498. doi: 10.3390/ijerph19084498.
Black churches have traditionally been a haven for Black American families; however, many churches do not currently have programs to support families living with dementia. Alter™ was established to assist faith communities in meeting the needs of these families and becoming a viable resource to promote their health and wellness. Alter™ achieves this aim through a three-pronged approach: (1) conducting educational sessions, (2) modifying Black churches to be dementia-inclusive spaces, and (3) providing ongoing support. The principal goal of Alter™ is to offer guidance to churches in adapting their community to reflect a supportive environment for families affected by dementia. Alter™ uses a partnership checklist to encourage activities that incorporate dementia education opportunities, environmental modifications, and dementia resources and support. This paper reports on a formative mixed-methods evaluation of church partners enrolled in Alter™. Church partner ambassadors within the faith communities participated in the evaluation survey ( = 8) and two focus groups ( = 11). Ambassadors are appointed by church leadership to lead the implementation of program activities. Data were collected concerning the levels of helpfulness, difficulty, usefulness, or utility of checklist activities and modifications and the ease of program implementation. The evaluation also assessed the COVID-19 pandemic's impact on each church's ability to implement activities and modifications. The survey results revealed that most required partnership activities and modifications were found to be at least moderately helpful. Some of the items (themes) that differed across church partners included barriers to implementing activities, the support provided and needed, and the use of program funding. This evaluation provides key insights to consider in developing and refining community-based, dementia-friendly communities (including faith communities). As implementation science expands and improves, the need to evaluate the implementation of programs continues to be highlighted. Our formative evaluation shed light on key areas in which modifications to our original programming would lead to program improvement and sustainability. Additionally, implementing the modifications identified in our evaluation will facilitate the achievement of the mission of Alter™ to improve the well-being of older adults affected by dementia and their families. Other programs would reap substantial benefits from engaging in similar formative evaluation efforts.
黑人教堂传统上一直是美国家庭的避风港;然而,许多教堂目前没有支持患有痴呆症的家庭的项目。Alter™ 的成立是为了帮助信仰团体满足这些家庭的需求,并成为促进他们健康和福祉的可行资源。Alter™ 通过三管齐下的方法实现这一目标:(1) 开展教育课程,(2) 使黑人教堂成为包容痴呆症的空间,以及 (3) 提供持续支持。Alter™ 的主要目标是为教堂提供指导,使其社区适应为受痴呆症影响的家庭提供支持的环境。Alter™ 使用合作关系清单来鼓励开展包含痴呆症教育机会、环境修改以及痴呆症资源和支持的活动。本文报告了对参加 Alter™ 的教堂合作伙伴进行的形成性混合方法评估。信仰社区内的教堂合作伙伴大使参加了评估调查(=8)和两个焦点小组(=11)。大使由教会领导层任命,负责领导方案活动的实施。收集了有关清单活动和修改的有用性、难度、有用性或实用性以及方案实施的难易程度的数据。评估还评估了 COVID-19 大流行对每个教堂实施活动和修改的能力的影响。调查结果表明,大多数需要的合作活动和修改被认为至少是中等程度的有帮助。教堂合作伙伴之间存在差异的一些项目(主题)包括实施活动的障碍、提供和需要的支持,以及方案资金的使用。这项评估为开发和完善以社区为基础的、对痴呆症友好的社区(包括信仰社区)提供了重要的参考。随着实施科学的扩展和改进,对方案实施情况进行评估的需求不断凸显。我们的形成性评估揭示了对我们原始方案进行修改将导致方案改进和可持续性的关键领域。此外,实施我们评估中确定的修改将有助于实现 Alter™ 的使命,即改善受痴呆症影响的老年人及其家人的福祉。其他方案从参与类似的形成性评估工作中也将获得实质性的收益。