Service User Research Enterprise, Health Service & Population Research, Institute of Psychiatry, Psychology and Neuroscience, King's College London, De Crespigny Park, London, SE5 8AF, United Kingdom.
Geographical and Earth Sciences, University of Glasgow, Glasgow, G12 8QQ, United Kingdom.
Soc Sci Med. 2022 Aug;306:115102. doi: 10.1016/j.socscimed.2022.115102. Epub 2022 Jun 2.
The conditions under which people labour in mental health research affect how and what knowledge is produced - and who benefits or doesn't from involvement in health research systems. There has been, however, little sustained investigation of the uneven modalities of labour exploitation across what are increasingly financialised systems of mental health research. This theoretical paper advances conceptual and empirical investigations of labour in health research - outlining how material precarity and epistemic precarity often go hand in hand, and largely drawing on examples from the UK. The intertwining of labour relations and epistemic cultures can be understood by bringing together insights from two bodies of knowledge not commonly in contact with one another - survivor/service user research and critical research on universities and academic labour. The article addresses how mental health research makes significant use of the labour of (i) contract researchers (many of whom work on precarious and exploitative contracts); (ii) lay contributors (through 'patient and public involvement'); and (iii) research participants (where the conditions underpinning participation in various kinds of research increasingly blur the distinction between volunteering, and 'gig' work). Labour relations affect, and are affected by, efforts to change epistemic cultures and reduce epistemic inequalities, and epistemic and material precarity make efforts to improve research culture much more difficult. Those experiencing both material and epistemic precarity in health research systems need to be at the heart of efforts to combat both.
人们在心理健康研究中劳动的条件影响着知识的产生方式和内容——以及谁能从参与卫生研究系统中受益或不能受益。然而,对于心理健康研究日益金融化系统中劳动剥削的不均衡模式,几乎没有持续的调查。本文通过概述物质脆弱性和认识脆弱性往往是如何携手并进的,并主要借鉴英国的例子,对健康研究中的劳动进行了概念和经验调查。通过将两个通常没有联系的知识体系——幸存者/服务使用者研究和关于大学和学术劳动的批判性研究——的见解结合起来,可以理解劳动关系和认识文化的交织。本文探讨了心理健康研究是如何大量利用(i)合同研究人员(其中许多人在不稳定和剥削性合同下工作);(ii)非专业人员(通过“患者和公众参与”);以及(iii)研究参与者(研究参与者的参与条件越来越模糊了志愿服务和“零工”工作之间的区别)的劳动的。劳动关系影响并受到改变认识文化和减少认识不平等的努力的影响,而认识和物质脆弱性使得改善研究文化的努力变得更加困难。那些在卫生研究系统中同时经历物质和认识脆弱性的人需要成为克服这两者的努力的核心。