Lee Jung-Ah, Kim Hyun Jung, Ju Eunae, Guo Yuqing, Rousseau Julie, Gibbs Lisa, Tran Tiffany Marie, Tom Courtney Elizabeth, Sabino-Laughlin Eilleen, Kehoe Priscilla
University of California, Irvine, USA.
Seattle University, WA, USA.
J Fam Nurs. 2022 Aug;28(3):231-242. doi: 10.1177/10748407221106531. Epub 2022 Jul 4.
Caregivers of persons with dementia (PWDs) were socially isolated with little support during the COVID-19 pandemic "Stay-At-Home" order in the United States. To enhance social and emotional connection for diverse caregivers, a culturally/linguistically appropriate telephone intervention provided compassionate listening, mindful breathing, and COVID-19 safety education. The study purpose was to understand caregiving challenges and to evaluate the intervention for caregivers during the early pandemic using a qualitative approach. Twenty-three caregivers participated in the intervention provided by bilingual research assistants for 3 months. Call logs were used to describe the caregivers' dialogue. Thematic analysis identified (a) the challenges, including fear of coronavirus disease, providing around-the-clock care, and forced isolation and negative emotions; and (b) caregivers' experience with the intervention, including connecting with the outside, relief from emotional stress, reliable COVID-19 information, and reinformed caregiving skills. Results suggest that the telephone support was of benefit to diverse caregivers of PWDs during the pandemic by promoting social connection and reducing emotional distress.
在美国新冠疫情“居家令”期间,痴呆症患者的照料者在社交上处于隔离状态,几乎得不到支持。为了增强不同照料者的社交和情感联系,一项符合文化/语言习惯的电话干预措施提供了富有同情心的倾听、正念呼吸以及新冠疫情安全教育。该研究的目的是了解照料方面的挑战,并采用定性方法评估疫情初期对照料者的干预措施。23名照料者参与了由双语研究助理提供的为期3个月的干预措施。通话记录被用于描述照料者的对话。主题分析确定了:(a)挑战,包括对新冠病毒疾病的恐惧、提供全天候照料、被迫隔离以及负面情绪;(b)照料者对干预措施的体验,包括与外界建立联系、缓解情绪压力、获得可靠的新冠疫情信息以及重新了解照料技能。结果表明,在疫情期间,电话支持通过促进社交联系和减轻情绪困扰,对痴呆症患者的不同照料者有益。