Given Fiona, Allan Meredith, McCarthy Shaun, Hemsley Bronwyn
Faculty of Health, University of Technology Sydney, Sydney, Australia.
Newcastle Law School, University of Newcastle, Newcastle, Australia.
Int J Speech Lang Pathol. 2023 Feb;25(1):72-76. doi: 10.1080/17549507.2022.2092212. Epub 2022 Jul 18.
The purpose of this article is to explore the Sustainable Development Goal of reduced inequalities (SDG 10) in relation to the experiences of people with communication disability with lived experiences and their access to self-determined healthcare. As such, the article also informs the goal of good health and well-being (SDG 3).
In preparing this article the authors reviewed recent literature on digital health records and digital autonomy as a means to improving equity of access and explored the experiences of two of the authors as people with severe communication disability who use a wide range of digital health technologies in pursuing safe and quality health care. The literature and their experiences highlight a need for improved co-design and usage across disability and health service systems management if e-health records are to be used to reduce inequalities in accessing healthcare.
Recent research and the lived experiences of the first two authors reflect that e-health information systems, designed to improve the consumer's ability to access and share their own health information, are not used to full advantage in disability and healthcare environments.
Increased access to multimodal communication strategies and communication technologies, along with user-centred co-design that enables digital health autonomy will further progress towards reduced inequalities (SDG 10) and good health and well-being (SDG 3) and for people with communication or swallowing disability.
本文旨在探讨与有沟通障碍的人们的生活经历及其获得自主医疗保健相关的减少不平等可持续发展目标(可持续发展目标10)。因此,本文也为良好健康和福祉目标(可持续发展目标3)提供信息。
在撰写本文时,作者回顾了近期关于数字健康记录和数字自主权作为改善获取公平性手段的文献,并探讨了两位作者作为严重沟通障碍者在追求安全和优质医疗保健过程中使用多种数字健康技术的经历。文献及其经历表明,如果要利用电子健康记录减少医疗保健获取方面的不平等,就需要在残疾和卫生服务系统管理方面改进协同设计和使用。
近期研究以及前两位作者的生活经历反映出,旨在提高消费者获取和分享自身健康信息能力的电子健康信息系统,在残疾和医疗保健环境中并未得到充分利用。
增加对多模式沟通策略和沟通技术的获取,以及以用户为中心的协同设计以实现数字健康自主权,将进一步推动减少不平等(可持续发展目标10)以及促进有沟通或吞咽障碍的人们实现良好健康和福祉(可持续发展目标3)。