“这带来的改变太不可思议了”：照料者体验路易体痴呆症专科护理 Admiral Nurse 服务的经历。
'It's just incredible the difference it has made': family carers' experiences of a specialist Lewy body dementia Admiral Nurse service.
机构信息
Manchester Centre for Health Psychology, Division of Psychology and Mental Health, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Sciences Centre, Manchester, UK.
Dementia UK, London, UK.
出版信息
Age Ageing. 2022 Oct 6;51(10). doi: 10.1093/ageing/afac207.
BACKGROUND
Lewy body dementia (LBD) is characterised by a complex array of symptoms. Being a family carer of someone with LBD can be challenging, and is associated with high levels of stress, depression and anxiety. Admiral Nursing services support family carers of people with dementia in the UK by providing tailored information, advice and therapeutic support. Recently, the Admiral Nurse model has been adapted to the needs of more specific populations, including the introduction of a new, specialist LBD Admiral Nurse.
OBJECTIVE
to explore family carers' experiences of the LBD Admiral Nurse service.
METHODS
fourteen family carers of people with LBD were interviewed about their experiences of the LBD Admiral Nurse service. Interview transcripts were analysed using thematic analysis.
RESULTS
four themes were identified: theme 1 described how participants valued the LBD Admiral Nurse's specialist expertise, which contrasted with the lack of knowledge they encountered in other services. In theme 2, participants described how the practical, tailored support provided by the LBD Admiral Nurse enabled them to better manage a variety of caring-related challenges. Theme 3 captured the emotional benefits that participants gained from being able to talk to someone who understood their situation. In theme 4, participants explained how the reliability of the LBD Admiral Nurse's support helped them feel supported in their role.
CONCLUSIONS
the specialist knowledge and expertise of the LBD Admiral Nurse enabled family carers to better support the people they cared for, and to relieve some of the emotional stress associated with caring.
背景
路易体痴呆症（LBD）的特征是一系列复杂的症状。作为 LBD 患者的家庭照顾者可能具有挑战性，并且与高水平的压力、抑郁和焦虑相关。海军上将护理服务通过提供量身定制的信息、建议和治疗支持，为英国的痴呆症家庭照顾者提供支持。最近，海军上将护士模式已经根据更具体人群的需求进行了调整，包括引入新的、专门的 LBD 海军上将护士。
目的
探讨家庭照顾者对 LBD 海军上将护士服务的体验。
方法
对 14 名患有 LBD 的人的家庭照顾者进行了访谈，了解他们对 LBD 海军上将护士服务的体验。使用主题分析对访谈记录进行了分析。
结果
确定了四个主题：主题 1 描述了参与者如何重视 LBD 海军上将护士的专业知识，这与他们在其他服务中遇到的缺乏知识形成了对比。在主题 2 中，参与者描述了 LBD 海军上将护士提供的实用、量身定制的支持如何使他们能够更好地管理各种与照顾相关的挑战。主题 3 捕捉到参与者从能够与理解他们情况的人交谈中获得的情感益处。在主题 4 中，参与者解释了 LBD 海军上将护士支持的可靠性如何帮助他们在角色中感到支持。
结论
LBD 海军上将护士的专业知识和专业技能使家庭照顾者能够更好地支持他们所照顾的人，并减轻与照顾相关的一些情绪压力。
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