“我非常担心他”：对患有自闭症的黑人儿童照料者压力的混合方法探索
'I am so fearful for him': a mixed-methods exploration of stress among caregivers of Black children with autism.
作者信息
Dababnah Sarah, Kim Irang, Shaia Wendy E
机构信息
School of Social Work, University of Maryland, Baltimore, Baltimore, MD, USA.
School of Social Work, Tulane University, New Orleans, LA, USA.
出版信息
Int J Dev Disabil. 2021 Jan 13;68(5):658-670. doi: 10.1080/20473869.2020.1870418. eCollection 2022.
Parenting stress is correlated with negative child and parent outcomes. Accurate parenting stress assessments are critical to inform appropriate service delivery. This study used mixed methods to identify stressors influencing parents of Black children with autism. Twenty-two parents of Black children with autism participated in individual interviews; 19 of these parents also completed the (4th edition). While we found some consistency between our qualitative and quantitative findings, the did not capture key stressors parents described in interviews, including cultural factors (e.g., perception of provider pushback due to race), challenges related to single parenting, and neighborhood violence. We detail recommendations for family-centered and culturally relevant efforts to assess and address parenting stress in this population.
育儿压力与负面的儿童和家长结果相关。准确的育儿压力评估对于提供适当的服务至关重要。本研究采用混合方法来确定影响自闭症黑人儿童家长的压力源。22位自闭症黑人儿童的家长参与了个人访谈；其中19位家长还完成了（第4版）。虽然我们发现定性和定量研究结果之间存在一些一致性，但（第4版）并未涵盖家长在访谈中描述的关键压力源，包括文化因素（例如，因种族而感受到提供者的抵制）、单亲育儿相关的挑战以及社区暴力。我们详细阐述了以家庭为中心且与文化相关的努力建议，以评估和解决该人群的育儿压力。
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