Nelson Ryan H, Moore Bryanna, Lynch Holly Fernandez, Waggoner Miranda R, Blumenthal-Barby Jennifer
Baylor College of Medicine, Center for Medical Ethics and Health Policy.
University of Texas Medical Branch, Institute for Bioethics and Health Humanities.
Am J Bioeth. 2023 Jan;23(1):12-24. doi: 10.1080/15265161.2022.2127968. Epub 2022 Oct 11.
While experience often affords important knowledge and insight that is difficult to garner through observation or testimony alone, it also has the potential to generate conflicts of interest and unrepresentative perspectives. We call this tension the . In this paper, we first outline appeals to experience made in debates about access to unproven medical products and disability bioethics, as examples of how experience claims arise in bioethics and some of the challenges raised by these claims. We then motivate the idea that experience can be an asset by appealing to themes in feminist and moral epistemology, distinguishing between epistemic and justice-based appeals. Next, we explain the concern that experience may be a liability by appealing to empirical work on cognitive biases and theoretical work about the problem of partial representation. We conclude with preliminary recommendations for addressing the paradox and offer several questions for future discussion.
虽然经验常常能提供重要的知识和洞察力,而这些仅凭观察或他人讲述是很难获得的,但它也有可能引发利益冲突和不具代表性的观点。我们将这种矛盾称为……在本文中,我们首先概述在关于获取未经证实的医疗产品和残疾生物伦理学的辩论中对经验的诉求,以此为例说明经验主张在生物伦理学中是如何产生的,以及这些主张所引发的一些挑战。然后,我们通过诉诸女性主义和道德认识论中的主题来激发这样一种观点,即经验可以成为一种财富,区分基于认知的诉求和基于正义的诉求。接下来,我们通过诉诸关于认知偏差的实证研究以及关于部分代表性问题的理论研究来解释对经验可能成为负担的担忧。我们最后提出解决这一悖论的初步建议,并提出几个供未来讨论的问题。