Limbu Bharati, Deb Shoumitro Shoumi
Department of Brain Sciences, Faculty of Medicine, Imperial College London, London, United Kingdom.
Front Psychiatry. 2022 Sep 29;13:954522. doi: 10.3389/fpsyt.2022.954522. eCollection 2022.
Experience Based Co-Design (EBCD) and co-production are interdisciplinary collaborative approaches to improve health care services by involving all stakeholders. These approaches capture the experiences of all stakeholders who come in contact with services and use experiences as evidence to promote and implement service changes. The use of psychotropic medications for behaviours that challenge (BtC) in people with intellectual disabilities (ID) is a complex issue because of its off-licence use and use in combination with other medications for physical and psychiatric co-morbidities, which leads to overmedication of people with ID. As support staff plays a pivotal role in the prescribing for people with ID, we have developed a staff training programme, SPECTROM, to help reduce overmedication. A project team developed SPECTROM under the guidance of a Programme Development Group (PDG) consisting of 21 stakeholders. The PDG analysed data from a literature review, four focus groups and a co-design event day involving 26 stakeholders. In this paper, we have presented data based on the findings from the co-design event day, primarily on the issue of support staff effectively liaising with professionals such as doctors, nurses, and other community learning disability team members. In-depth information and recommendations were proposed at the co-design event, which helped develop the draft SPECTROM. The draft was finalised after receiving feedback from 56 stakeholders. Co-production and a modified EBCD can be successfully used to create training interventions and improve health care services. More research should utilise co-production and EBCD and use service users' experiences to develop interventions and improve health care services.
基于经验的协同设计(EBCD)和共同生产是跨学科的协作方法,旨在通过让所有利益相关者参与来改善医疗服务。这些方法收集了所有接触服务的利益相关者的经验,并将经验作为促进和实施服务变革的证据。由于其非许可使用以及与用于身体和精神共病的其他药物联合使用,在智力残疾(ID)患者中使用精神药物治疗具有挑战性的行为(BtC)是一个复杂的问题,这导致了ID患者的过度用药。由于支持人员在为ID患者开处方方面起着关键作用,我们开发了一个员工培训计划SPECTROM,以帮助减少过度用药。一个项目团队在由21名利益相关者组成的项目开发小组(PDG)的指导下开发了SPECTROM。PDG分析了文献综述、四个焦点小组以及一个涉及26名利益相关者的协同设计活动日的数据。在本文中,我们展示了基于协同设计活动日的调查结果的数据,主要是关于支持人员与医生、护士和其他社区学习障碍团队成员等专业人员有效联络的问题。在协同设计活动中提出了深入的信息和建议,这有助于制定SPECTROM草案。在收到56名利益相关者的反馈后,该草案最终确定。共同生产和经过改进的EBCD可以成功用于创建培训干预措施并改善医疗服务。更多的研究应该利用共同生产和EBCD,并利用服务使用者的经验来开发干预措施并改善医疗服务。