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由过去与现在照亮的新常态!一项定性研究:晚期心力衰竭或肺衰竭患者的日常生活经历与挑战。

A New Normality Illuminated by Past and Present! A Qualitative Study: Experiences and Challenges of Everyday Life in Patients With Advanced Heart or Lung Failure.

作者信息

Graarup Jytte, Højskov Ida Elisabeth

机构信息

University of Copenhagen, Denmark.

出版信息

Glob Qual Nurs Res. 2022 Nov 29;9:23333936221140374. doi: 10.1177/23333936221140374. eCollection 2022 Jan-Dec.

Abstract

The aim of this study was to gain insight into the phenomena of everyday life as experienced and coped with by patients living with advanced heart or lung failure. We employed a qualitative design using a phenomenological hermeneutic approach. Data derived from 10 nursing consultations in a holistic setting. Ricoeur's theory of interpretation inspired the text analysis. The study emphasizes time (past, present, and future) as an overall everyday life theme, playing an essential role associated with improvements or poor outcomes related to physical, mental, and intersubjective challenges. Patients accepted and lived with the challenges, experiencing changes, as transition, but also coped with their new normal, which involved improvements or poor outcomes, some invisible to the community. Assumptions about everyday life changed significantly, the changes possibly essential for intersubjective relations. A reflective approach, can help patients to evolve, using knowledge from the past and present to cope with the future.

摘要

本研究的目的是深入了解晚期心力衰竭或肺衰竭患者所经历和应对的日常生活现象。我们采用质性设计,运用现象学诠释学方法。数据来源于整体环境下的10次护理咨询。里科尔的诠释理论启发了文本分析。该研究强调时间(过去、现在和未来)作为一个整体的日常生活主题,在与身体、心理和主体间挑战相关的改善或不良结果中发挥着重要作用。患者接受并面对这些挑战,将经历的变化视为过渡,但也应对着他们的新常态,其中涉及改善或不良结果,有些对社区来说是无形的。对日常生活的假设发生了显著变化,这些变化可能对主体间关系至关重要。一种反思性方法可以帮助患者利用过去和现在的知识来应对未来,从而实现成长。

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