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阿西尔地区癫痫患儿照料者的生活质量与癫痫发作控制程度的关系

Quality of life among caregivers of epileptic children with degree of controlling seizures in Aseer region.

作者信息

Asiri Ashwag, Mohammad Asiri, Otaif Mansour, Amer Khaled Abdulwahab, Aldosari Abdulrahman Ali, Al-Maalwi Razan Saeed, Al-Muhsin Sereen Dhafer, Amer Arwa Abdulwahab

机构信息

Department of Child Health, King Khalid University, Abha, Kingdom of Saudi Arabia.

Abha Maternity and Children Hospital, Abha, Kingdom of Saudi Arabia.

出版信息

J Family Med Prim Care. 2022 Sep;11(9):5340-5344. doi: 10.4103/jfmpc.jfmpc_2255_21. Epub 2022 Oct 14.

Abstract

Epilepsy affects nearly 50 million people worldwide. Epilepsy can affect the quality of life of both the child and the caregiver leaving them unable to function in other areas of life. This quality of life is highly dependent on treatment adherence and how individuals feel about taking their medication. In our study, we aimed to investigate the frequency of medication adherence and the quality of life of caregivers of children with epilepsy. For this purpose, we conducted a cross-sectional survey at the Abha Maternity and Children's Hospital. We enrolled 133 consecutive participants and asked them to complete a questionnaire. The results showed that 37.6% of the participants forgot to take their medications, 9.8% of the participants reported that they were sometimes careless about giving their children medications and sometimes stopped giving them when the children were feeling better, 15.8% of the participants indicated that they sometimes stopped giving the medication when they felt that their children were getting worse when they took the medication., and 26.3% of the participants agreed that they only administered the medication when the children were sick. It was also found that the quality of life of the caregivers decreased when they forgot to give their children the medication and the quality of life of the caregivers increased when they continued to take the medication. In conclusion, quality of life increases as adherence to treatment increases, indicating that more intervention programs are needed to improve the adherence of epilepsy patients.

摘要

癫痫在全球影响着近5000万人。癫痫会影响儿童及其照料者的生活质量,使他们在生活的其他方面无法正常发挥功能。这种生活质量高度依赖于治疗依从性以及个体对服药的感受。在我们的研究中,我们旨在调查癫痫患儿照料者的服药依从频率和生活质量。为此,我们在阿卜哈妇产儿童医院进行了一项横断面调查。我们招募了133名连续的参与者,并要求他们完成一份问卷。结果显示,37.6%的参与者会忘记服药,9.8%的参与者报告说他们有时在给孩子服药时粗心大意,有时在孩子感觉好转时就停止给药,15.8%的参与者表示,当他们觉得孩子服药后病情恶化时,有时会停止给药,26.3%的参与者同意他们只在孩子生病时给药。研究还发现,照料者忘记给孩子服药时,其生活质量会下降,而当他们持续服药时,照料者的生活质量会提高。总之,生活质量随着治疗依从性的提高而提高,这表明需要更多的干预项目来提高癫痫患者的依从性。

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