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理解自闭症中的污名:一项叙述性综述及理论模型

Understanding Stigma in Autism: A Narrative Review and Theoretical Model.

作者信息

Turnock Alice, Langley Kate, Jones Catherine R G

机构信息

School of Medicine, Cardiff University, University Hospital of Wales, Cardiff, United Kingdom.

Wales Autism Research Centre, School of Psychology, Cardiff University, Cardiff, United Kingdom.

出版信息

Autism Adulthood. 2022 Mar 1;4(1):76-91. doi: 10.1089/aut.2021.0005. Epub 2022 Mar 9.

Abstract

The experience of stigma by autistic people is relatively understudied, despite contributing to a range of poor outcomes and having an overarching impact on well-being. The current review of the literature synthesizes research to determine what is currently known and presents a theoretical model of autism stigma. Autism stigma is primarily influenced by a public and professional understanding of autism in combination with interpretation of visible autistic traits. Moderating factors include the quality and quantity of contact with autistic people, cultural factors, sex and gender, individual differences, and diagnostic disclosure. Stigma can reduce well-being as well as increase the presence of camouflaging behaviors, which mask autistic traits. Caregivers of autistic people can experience stigma by association, that is, affiliate stigma, which can impact their own well-being. A variety of interventions and approaches to reduce stigma are discussed, including "autism friendly" spaces, positive media representation, educational and psychosocial training for the public and professionals, as well as cultural and systemic shifts that foster inclusivity and recognize neurodiversity.

摘要

尽管自闭症患者所遭受的污名化经历会导致一系列不良后果,并对幸福感产生全面影响,但这方面的研究相对较少。当前的文献综述综合了各项研究,以确定目前已知的情况,并提出了一个自闭症污名化的理论模型。自闭症污名化主要受公众和专业人士对自闭症的理解以及对明显自闭症特征的解读的影响。调节因素包括与自闭症患者接触的质量和数量、文化因素、性别、个体差异以及诊断披露情况。污名化会降低幸福感,并增加掩饰行为的出现,这些行为会掩盖自闭症特征。自闭症患者的照顾者可能会因关联而遭受污名化,即附属污名,这可能会影响他们自身的幸福感。文中讨论了各种减少污名化的干预措施和方法,包括“自闭症友好”空间、积极的媒体呈现、针对公众和专业人士的教育及心理社会培训,以及促进包容性和认可神经多样性的文化和系统性转变。

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