患者进行数字疼痛评估的策略：一项对患有可动性埃勒斯-当洛斯综合征的个体的定性访谈研究。
Patients' strategies for numeric pain assessment: a qualitative interview study of individuals with hypermobile Ehlers-Danlos Syndrome.
机构信息
Center for Bioethics, Indiana University School of Medicine, Indianapolis, IN, USA.
Department of Medicine, Indiana University School of Medicine, Indianapolis, IN, USA.
出版信息
Disabil Rehabil. 2024 Apr;46(8):1527-1533. doi: 10.1080/09638288.2023.2200039. Epub 2023 Apr 17.
PURPOSE
Chronic pain is a common feature of hypermobile Ehlers-Danlos Syndrome (hEDS), yet how patients assess and communicate their pain remains poorly understood. The objective of the present study was to explore the use of numeric pain assessment in individuals with hEDS, from a patient-centered perspective.
MATERIALS AND METHODS
Our analysis is based on in-depth qualitative interviews. The interviews were conducted over the phone. Our participants were patients living with hEDS ( = 35). Interviews were recorded, transcribed, and analyzed to identify factors related to their use of these pain assessment instruments.
RESULTS
Three primary themes emerged from these data, namely, (1) confusion around the quantification of multidimensional pain, (2) the subjectivity of pain experience, and (3) a strategic use of assessments for practical purposes beyond the accurate representation of pain.
UNLABELLED
These results demonstrate the need for caution in relying exclusively on numeric pain assessment instruments. We conclude with a brief proposal for a clinical communication strategy that may help to address the limitations of numeric pain assessment that were identified in our interviews.
目的
慢性疼痛是全身性弹性过度综合征（hEDS）的常见特征，但患者如何评估和交流他们的疼痛仍知之甚少。本研究的目的是从患者为中心的角度探讨数值疼痛评估在 hEDS 患者中的应用。
材料和方法
我们的分析基于深入的定性访谈。访谈通过电话进行。我们的参与者是患有 hEDS 的患者（ = 35）。对访谈进行录音、转录和分析，以确定与他们使用这些疼痛评估工具相关的因素。
结果
从这些数据中出现了三个主要主题，即（1）多维疼痛量化的混淆，（2）疼痛体验的主观性，以及（3）出于准确表示疼痛之外的实际目的而对评估进行策略性使用。
未加标签
这些结果表明，仅依赖数值疼痛评估工具需要谨慎。我们最后提出了一个简短的临床沟通策略建议，该建议可能有助于解决我们访谈中确定的数值疼痛评估的局限性。
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