Rare Incurable Disease Integrative Medicine Treatment Laboratory, Jeonnam, Republic of Korea.
Division of Rheumatology, Department of Internal Medicine, Wonkwang University Hospital, Iksan, Republic of Korea.
Medicine (Baltimore). 2023 May 5;102(18):e33643. doi: 10.1097/MD.0000000000033643.
Patients with incurable diseases experience difficulty carrying out activities of daily living and rely on caregivers. Caregivers of patients with fibromyalgia (FM) are unable to understand the extent of the patients' suffering because the pain sites are invisible. To address this problem, this study will apply an integrative healthcare service model to a single FM case to manage pain and enhance the quality of life and, subsequently, gather feedback from different sources regarding the treatment. This paper presents the study protocol.
We will conduct an observational study to gather quantitative and qualitative feedback from various perspectives regarding the application of an integrative healthcare service program for FM patients developed in Korea for an FM patient-caregiver pair. The program will comprise eight 100-minute weekly sessions, during which integrative services that combine Western and Oriental medicines (Korean traditional medicine) will be provided to enhance pain management and quality of life. The feedback collected after each session will be reflected in the next session' content.
The results will comprise the feedback from the patient and caregiver in accordance with revisions made to the program.
The results will provide basic data for optimizing an integrative healthcare service system in Korea for patients suffering from chronic pain owing to diseases such as FM.
患有不治之症的患者在日常生活活动中会遇到困难,并依赖护理人员。纤维肌痛 (FM) 患者的护理人员无法理解患者的痛苦程度,因为疼痛部位是看不见的。为了解决这个问题,本研究将综合医疗保健服务模式应用于单一 FM 病例,以管理疼痛并提高生活质量,随后从不同来源收集关于治疗的反馈。本文介绍了研究方案。
我们将进行一项观察性研究,从不同角度收集关于为 FM 患者-护理人员对开发的韩国 FM 患者综合医疗保健服务计划应用的定量和定性反馈。该计划将包括八次每周 100 分钟的课程,在此期间将提供结合西方和东方药物(韩国传统医学)的综合服务,以加强疼痛管理和生活质量。每次课程后收集的反馈将反映在下一次课程的内容中。
结果将包括根据该计划进行修订后的患者和护理人员的反馈。
研究结果将为韩国优化针对 FM 等疾病导致慢性疼痛患者的综合医疗保健服务系统提供基础数据。