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“我们的母亲将其传承给了我们。她的母亲将其传承给了她”:城市原住民和托雷斯海峡岛民关于社区福祉、健康妊娠和预防胎儿酒精谱系障碍的交谈。

"Our Mothers Have Handed That to Us. Her Mother Has Handed That to Her": Urban Aboriginal and Torres Strait Islander Yarning about Community Wellbeing, Healthy Pregnancies, and the Prevention of Fetal Alcohol Spectrum Disorder.

机构信息

Medical School, General Practice Clinical Unit, Level 8 Health Sciences Building, Royal Brisbane & Women's Hospital, The University of Queensland, Herston, QLD 4029, Australia.

Southern Queensland Centre of Excellence in Aboriginal and Torres Strait Islander Primary Health Care, Queensland Health, P.O. Box 52, Inala, QLD 4077, Australia.

出版信息

Int J Environ Res Public Health. 2023 Apr 23;20(9):5614. doi: 10.3390/ijerph20095614.

Abstract

In Australia, fetal alcohol spectrum disorder (FASD) is a largely hidden disability that is currently under-recognized, under-resourced, and under- or misdiagnosed. Unsurprisingly, efforts to prevent FASD in urban Aboriginal and Torres Strait Islander communities are lacking. Further, mainstream approaches are not compatible with diverse and distinct Aboriginal and Torres Strait Islander ways of approaching family, pregnancy, and parenting life. To support the creation of culturally appropriate urban Aboriginal and Torres Strait Islander FASD prevention strategies, we sought to understand local perspectives, experiences, and priorities for supporting healthy and alcohol-free pregnancies. Using a narrative methodology, we undertook research yarns with eight female and two male community participants. Data were analyzed using a narrative, thematic analysis and guided by an Indigenist research practice of reflexive listening. Participant yarns provided important insights into local urban Aboriginal and Torres Strait Islander cultural, social, and structural determinants that support family and child health, alcohol-free pregnancies, and the prevention of FASD. The results provide critical guidance for Indigenizing and decolonizing FASD prevention strategies to support culturally safe, relevant, and strengths-based services. This approach has critical implications for all health and social professionals and can contribute to Aboriginal and Torres Strait Islander peoples' justice, recovery, and healing from colonization.

摘要

在澳大利亚,胎儿酒精谱系障碍(FASD)是一种很大程度上被隐藏的残疾,目前未得到充分认识、资源不足、诊断不足或误诊。毫不奇怪,预防城市原住民和托雷斯海峡岛民社区的 FASD 的努力缺乏。此外,主流方法与不同的、独特的原住民和托雷斯海峡岛民的家庭、怀孕和育儿方式不兼容。为了支持制定文化上适当的城市原住民和托雷斯海峡岛民 FASD 预防策略,我们试图了解当地的观点、经验和支持健康和无酒精怀孕的优先事项。我们使用叙事方法与八名女性和两名男性社区参与者进行了研究。数据使用叙事、主题分析进行分析,并受反思倾听的本土主义研究实践指导。参与者的故事为当地城市原住民和托雷斯海峡岛民文化、社会和结构决定因素提供了重要见解,这些因素支持家庭和儿童健康、无酒精怀孕以及预防 FASD。研究结果为本土化和非殖民化 FASD 预防策略提供了重要指导,以支持文化安全、相关和基于优势的服务。这种方法对所有卫生和社会专业人员都具有重要意义,并有助于原住民和托雷斯海峡岛民人民从殖民主义中获得正义、恢复和治愈。

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