AlNowaiser Maha W, Bakraa Reem M, Alamoudi Malak M, Basonbul Razan A, Bukhari Afnan F, Zawawi Faisal
Otolaryngology - Head and Neck Surgery, King Abdulaziz University, Jeddah, SAU.
Emergency, King Abdulaziz University, Jeddah, SAU.
Cureus. 2023 May 12;15(5):e38936. doi: 10.7759/cureus.38936. eCollection 2023 May.
Background There are numerous quality-of-life (QoL) assessment tools available; however, only a few are designed specifically for children with chronic conditions. Among these assessment tools are the Hearing Environments and Reflection on QoL questionnaires for children (HEAR-QL26, HEAR-Q28) developed by Washington University. Unfortunately, there are no other tools that assess hearing loss, and none of them are in Arabic. This paper aims to adapt the HEAR-QL to Arabic and provide an accessible method of measuring the QoL of children with hearing loss in our Arabic-speaking populations. Methodology An independent medical translator translated the HEAR-QL26 and HEAR-QL28 into Arabic. The translations were then examined by two bilingual, native Arabic-speaking otolaryngologists who modified the inadequate questions. Back-translation of the Arabic version into English was subsequently performed by an independent translator. Intra-rater reliability was tested for each of HEAR-QL26 and HEAR-QL28 using 10 participants for each survey, where the participants answered the surveys twice with a period of two weeks between them. A pilot study was conducted which had a total of 40 participants divided equally between the two surveys where each group had an equal number of hearing participants and participants with hearing loss. Results Both HEAR-QL26 and HEAR-QL28 were validated with an overall intra-rater reliability of 88.85% and 87.86% respectively. In the pilot study, the HEAR-QL26 participants with normal hearing scored a median of 2437.5, while the participants with hearing loss scored a median of 1837.5 (p = 0.001). Moreover, HEAR-QL28 participants had a median score of 2725 among participants with normal hearing and 1725 for participants with hearing loss (p = 0.001). Conclusion HEAR-QL is a well-established QoL in children with hearing loss. The validated Arabic adaptation can now be used to measure deafness in Arabic-speaking children.
背景 有许多可用的生活质量(QoL)评估工具;然而,专门为慢性病患儿设计的工具却很少。华盛顿大学开发的儿童听力环境与生活质量问卷(HEAR - QL26、HEAR - Q28)就是这些评估工具中的一部分。不幸的是,没有其他评估听力损失的工具,而且它们都没有阿拉伯语版本。本文旨在将HEAR - QL改编为阿拉伯语,并提供一种可用于测量我们阿拉伯语人群中听力损失儿童生活质量的便捷方法。
方法 一位独立的医学翻译人员将HEAR - QL26和HEAR - QL28翻译成阿拉伯语。然后由两位会说阿拉伯语的双语耳鼻喉科医生对翻译内容进行检查,他们修改了不恰当的问题。随后由一位独立翻译人员将阿拉伯语版本回译成英语。对HEAR - QL26和HEAR - QL28分别进行了评分者内部信度测试,每项调查使用10名参与者,参与者对调查进行两次回答,两次回答之间间隔两周。进行了一项试点研究,共有40名参与者,在两项调查中平均分配,每组中听力正常的参与者和听力损失的参与者数量相等。
结果 HEAR - QL26和HEAR - QL28均得到验证,评分者内部信度总体分别为88.85%和87.86%。在试点研究中,HEAR - QL26中听力正常的参与者中位数得分为2437.5,而听力损失的参与者中位数得分为1837.5(p = 0.001)。此外,HEAR - QL28中听力正常的参与者中位数得分为2725,听力损失的参与者中位数得分为1725(p = 0.001)。
结论 HEAR - QL是一种成熟的用于听力损失儿童的生活质量评估工具。经过验证的阿拉伯语改编版本现在可用于测量说阿拉伯语儿童的听力损失情况。