Moniz-Cook Esme, Mountain Gail
Faculty of Health Sciences, University of Hull, Hull, United Kingdom.
Centre for Applied Dementia Studies, University of Bradford, Bradford, United Kingdom.
Front Rehabil Sci. 2023 May 4;4:1052244. doi: 10.3389/fresc.2023.1052244. eCollection 2023.
Disproportionate negative effects since the pandemic have amplified the already limited post-diagnostic support for older people with dementia. This paper summarizes an exploratory randomized controlled study of a proactive family-based intervention compared with "usual" post-diagnostic dementia care. Memory clinic practitioners collaborated with the family doctor (GP) to coordinate this. At 12-month follow-up, positive effects on mood, behavior, carer coping and maintenance of care at home were found. Current approaches to deliver post-diagnostic support in primary care may require rethinking since (i) GP workloads have increased with low numbers of GPs per head of population in parts of England; and (ii) unlike many other long-term conditions, ongoing stigma, fear and uncertainty associated with dementia adds to the huge complexity of timely care provision. There is a case for return to a "one-stop facility", with a single pathway of continuing multidisciplinary coordinated care for older people with dementia and families. Future longitudinal research could compare structured post-diagnostic psychosocial intervention coordinated by skilled practitioners in a single locality memory service "hub", against other approaches such support organized mostly within primary care. Dementia-specific instruments for outcome measurement are available for use in routine practice, and should be included in such comparative studies.
自疫情以来,不成比例的负面影响加剧了对老年痴呆症患者本就有限的诊断后支持。本文总结了一项探索性随机对照研究,该研究将基于家庭的积极干预措施与“常规”诊断后痴呆症护理进行了比较。记忆诊所的从业者与家庭医生(全科医生)合作进行协调。在12个月的随访中,发现该干预措施对患者情绪、行为、护理人员应对能力以及在家护理的维持情况产生了积极影响。由于以下原因,目前在初级保健中提供诊断后支持的方法可能需要重新思考:(i)在英格兰部分地区,全科医生工作量增加,而人均全科医生数量较少;(ii)与许多其他长期疾病不同,与痴呆症相关的持续污名化、恐惧和不确定性增加了及时提供护理的巨大复杂性。有理由回归到“一站式服务设施”,为老年痴呆症患者及其家庭提供单一的持续多学科协调护理途径。未来的纵向研究可以比较由单一地区记忆服务“中心”的熟练从业者协调的结构化诊断后心理社会干预措施与其他方法,如主要在初级保健内部组织的此类支持。有针对痴呆症的结果测量工具可用于常规实践,应将其纳入此类比较研究。