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比利时法语区专业哮喘管理中心的医疗保健专业人员对患者报告结局指标的使用:一项混合方法研究。

The use of patient-reported outcome measures by healthcare professionals in specialized asthma management centers in French-speaking Belgium: A mixed-methods study.

作者信息

Louis Gilles, Voz Bernard, Guillaume Michèle, Kirkove Delphine, Pétré Benoit

机构信息

Department of Public Health, University of Liège, Liege, Belgium.

出版信息

Clin Transl Allergy. 2023 May;13(5):e12248. doi: 10.1002/clt2.12248.

Abstract

INTRODUCTION

Recently, the literature has promoted the use of patient-reported outcome measures (PROMs) in clinical practice as a means to foster patient engagement. However, conditions necessary to support the use of PROMs to encourage asthma patient engagement are not clearly defined. Therefore, we sought (1) to explore the current and ideal use of PROMs by healthcare professionals (HP) in specialized asthma management centers in French-speaking Belgium and (2) to understand under which conditions the use of PROMs contributes to patient engagement.

METHODS

We undertook a mixed-methods study with both anonymous online survey and in-person qualitative semi-structured interviews conducted with HPs to understand their perspectives on the routine use of PROMs. HPs were recruited from 16 asthma centers (French-speaking Belgium) identified via the Belgian Respiratory Society.

RESULTS

Of the 170 HPs identified from the 16 participating centers, 51 (30%) responded to the survey (n = 51) and 11 completed semi-structured interviews. 53% (27/51) of the surveyed HPs reported using PROMs primarily for asthma monitoring and clinical research while all reported that PROMs should primarily be used in practice to facilitate communication with the patient and to address neglected aspects of the care relationship such as the psychosocial aspects of the disease. The qualitative interviews revealed avenues for moving from a medical-centered and utilitarian use of PROMs to a use serving patient engagement. This would require HPs to go beyond their current representation of PROMs, to use instruments offering a more holistic image of the patient, to incorporate PROMs into a digital tool and to integrate PROMs in a patient education process.

CONCLUSION

The main findings of this study suggest relevant avenues for using PROMs in ways that support patient engagement.

摘要

引言

最近,文献提倡在临床实践中使用患者报告结局测量工具(PROMs),以此促进患者参与。然而,支持使用PROMs来鼓励哮喘患者参与所需的条件尚未明确界定。因此,我们旨在:(1)探索比利时法语区专业哮喘管理中心的医疗保健专业人员(HP)对PROMs的当前及理想使用情况;(2)了解在哪些条件下使用PROMs有助于患者参与。

方法

我们采用了混合方法研究,对HP进行匿名在线调查和面对面的定性半结构化访谈,以了解他们对PROMs常规使用的看法。HP是从比利时呼吸学会确定的16个哮喘中心(比利时法语区)招募的。

结果

在16个参与中心确定的170名HP中,51名(30%)回复了调查(n = 51),11名完成了半结构化访谈。53%(27/51)的受访HP报告主要将PROMs用于哮喘监测和临床研究,而所有受访者都表示PROMs在实践中应主要用于促进与患者的沟通,并解决护理关系中被忽视的方面,如疾病的心理社会方面。定性访谈揭示了从以医疗为中心和功利性使用PROMs转向服务于患者参与的使用方式的途径。这将要求HP超越他们目前对PROMs的认知,使用能提供患者更全面形象的工具,将PROMs纳入数字工具,并将PROMs整合到患者教育过程中。

结论

本研究的主要发现为以支持患者参与方式使用PROMs提供了相关途径。

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