Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital NSW, Sydney, New South Wales, Australia.
Discipline of Paediatrics & Child Health, UNSW Medicine & Health, Randwick Clinical Campus, University of NSW, Sydney, New South Wales, Australia.
Support Care Cancer. 2023 Jul 4;31(7):441. doi: 10.1007/s00520-023-07875-4.
To qualitatively explore Australian healthcare professionals' perspectives on how to improve the care and management of cancer-related financial toxicity, including relevant practices, services, and unmet needs.
We invited healthcare professionals (HCP) who currently provide care to people with cancer within their role to complete an online survey, which was distributed via the networks of Australian clinical oncology professional associations/organisations. The survey was developed by the Clinical Oncology Society of Australia's Financial Toxicity Working Group and contained 12 open-ended items which we analysed using descriptive content analysis and NVivo software.
HCPs (n = 277) believed that identifying and addressing financial concerns within routine cancer care was important and most believed this to be the responsibility of all HCP involved in the patient's care. However, financial toxicity was viewed as a "blind spot" within a medical model of healthcare, with a lack of services, resources, and training identified as barriers to care. Social workers reported assessment and advocacy were part of their role, but many reported lacking formal training and understanding of financial complexities/laws. HCPs reported positive attitudes towards transparent discussions of costs and actioning cost-reduction strategies within their control, but feelings of helplessness when they perceived no solution was available.
Identifying financial needs and providing transparent information about cancer-related costs was viewed as a cross-disciplinary responsibility, however, a lack of training and services limited the provision of support. Increased cancer-specific financial counselling and advocacy, via dedicated roles or developing HCPs' skills, is urgently needed within the healthcare system.
定性探讨澳大利亚医疗保健专业人员如何改善与癌症相关的财务毒性的护理和管理,包括相关实践、服务和未满足的需求。
我们邀请了目前在其工作岗位上为癌症患者提供护理的医疗保健专业人员(HCP)通过澳大利亚临床肿瘤专业协会/组织的网络完成在线调查。该调查由澳大利亚临床肿瘤学会财务毒性工作组制定,包含 12 个开放式项目,我们使用描述性内容分析和 NVivo 软件对其进行了分析。
HCP(n=277)认为在常规癌症护理中识别和解决财务问题很重要,他们大多认为这是所有参与患者护理的 HCP 的责任。然而,财务毒性被视为医疗保健的医疗模式中的“盲点”,缺乏服务、资源和培训被认为是护理的障碍。社会工作者报告说评估和倡导是他们工作的一部分,但许多人报告说缺乏财务复杂性/法律的正式培训和理解。HCP 对在其控制范围内透明地讨论成本和实施成本降低策略持积极态度,但当他们认为没有解决方案时,会感到无助。
确定财务需求并提供有关癌症相关费用的透明信息被视为跨学科责任,但培训和服务的缺乏限制了支持的提供。在医疗保健系统中迫切需要增加专门的财务咨询和倡导角色或培养 HCP 的技能。