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GRAPPA 2022 年年会 IDEOM 分组会皮肤研究工作组报告。

Report of the Skin Research Workgroups From the IDEOM Breakout at the GRAPPA 2022 Annual Meeting.

机构信息

M.P. Zundell, BS, Department of Dermatology, Icahn School of Medicine at Mount Sinai, New York, New York.

M.J. Woodbury, BS, L.M. Perez-Chada, MD, MMSc, Department of Dermatology, Harvard Medical School, Brigham and Women's Hospital, Boston, Massachusetts.

出版信息

J Rheumatol. 2023 Nov;50(Suppl 2):47-50. doi: 10.3899/jrheum.2023-0528. Epub 2023 Jul 15.

Abstract

The International Dermatology Outcome Measures (IDEOM) organization presented an update on its progress related to patient-centered outcome measures for psoriasis (PsO) and psoriatic arthritis (PsA) at the 2022 annual meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA). The Musculoskeletal (MSK) Symptoms working group presented an update on the development of the IDEOM Musculoskeletal Questionnaire (IDEOM MSK-Q). The IDEOM MSK-Q is a patient-reported outcome measure intended to capture MSK symptoms and describe their intensity and impact on health-related quality of life in patients with psoriatic disease. IDEOM also presented the progress of the integration of the Psoriasis Epidemiology Screening Tool (PEST) and Psoriatic Arthritis Impact of Disease (PsAID) questionnaires into the Epic electronic health record system. This will allow for automated PsA screening and symptom measurement in the hopes of improving disease detection and treat-to-target strategies. The Treatment Satisfaction working group discussed the development of the DermSat-7, a 7-item treatment satisfaction questionnaire specific for dermatological conditions. The DermSat-7 is currently being validated in a multicenter study of patients with PsO.

摘要

国际皮肤病结局测量(IDEOM)组织在 2022 年银屑病和银屑病关节炎研究与评估团体(GRAPPA)年会上介绍了其在以患者为中心的银屑病(PsO)和银屑病关节炎(PsA)结局测量方面的进展情况。肌肉骨骼(MSK)症状工作组介绍了 IDEOM 肌肉骨骼问卷(IDEOM MSK-Q)的开发进展。IDEOM MSK-Q 是一种患者报告的结局测量工具,旨在捕捉 MSK 症状,并描述其在患有银屑病疾病的患者的健康相关生活质量方面的强度和影响。IDEOM 还介绍了将银屑病流行病学筛查工具(PEST)和银屑病关节炎疾病影响(PsAID)问卷纳入 Epic 电子健康记录系统的进展情况。这将允许对 PsA 进行自动筛查和症状测量,以期改善疾病检测和达标治疗策略。治疗满意度工作组讨论了 DermSat-7 的开发情况,这是一种针对皮肤病的 7 项治疗满意度问卷。DermSat-7 目前正在一项针对 PsO 患者的多中心研究中进行验证。

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