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基因与正义、非理想理论与专利的作用:以 CRISPR-Cas9 为例。

Genetics and Justice, Non-Ideal Theory and the Role of Patents: The Case of CRISPR-Cas9.

机构信息

Research Unit 'Ethics of Genome Editing', Institute of Ethics and History of Medicine, University of Tübingen Gartenstraße 47, 72074 Tübingen Germany.

出版信息

Eur J Health Law. 2022 Apr 8;29(3-5):543-561. doi: 10.1163/15718093-bja10075.

Abstract

There are ongoing concerns of social justice regarding inequalities in the distribution of access to potential genome editing technologies. Working within non-ideal theory, Colin Farrelly advances a justification for the use of patents to speed up the arrival of safe and effective interventions for all, including the socially disadvantaged. This paper argues that such success is less assured when one considers the actual functioning of patents and the practical implications of the patent system in the context of biotechnological innovations. I suggest that non-ideal theoretical approaches risk reverting back to a form of ideal theory if they simply refer to such real-world constraints - e.g. patents - but do not critically assess and fully examine how such constraints manifest themselves in practice. I highlight some considerations that would be important in order to develop and foster a more robust non-ideal approach to justice in biotechnological developments.

摘要

关于潜在基因组编辑技术获取机会的分配不平等,存在着持续的社会公正问题。科林·法雷利(Colin Farrelly)在非理想理论的框架内,为利用专利来加速为所有人(包括社会弱势群体)提供安全有效的干预措施提供了正当理由。本文认为,如果考虑到专利的实际运作以及专利制度在生物技术创新方面的实际影响,那么这种成功就不太确定了。我认为,如果非理想理论方法只是简单地提及现实世界中的这些限制因素(例如专利),而不批判性地评估和充分研究这些限制因素在实践中是如何表现出来的,那么它们可能会回到某种形式的理想理论。我强调了一些重要的考虑因素,以便为生物技术发展中的正义制定和培养一种更强大的非理想方法。

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