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拇外翻疼痛患者的生活体验:一项描述性定性研究。

Lived experience of people with painful hallux valgus: A descriptive qualitative study.

作者信息

Cotchett Matthew, Bramston Cassandra, Bergin Shan, Menz Hylton B, Jessup Rebecca

机构信息

Discipline of Podiatry, School of Allied Health, Human Services and Sport, La Trobe University, Melbourne, Victoria, Australia.

Staying Well and Hospital Without Walls Program, Northern Health, Epping, Victoria, Australia.

出版信息

Musculoskeletal Care. 2023 Dec;21(4):1421-1428. doi: 10.1002/msc.1822. Epub 2023 Sep 23.

Abstract

OBJECTIVE

Hallux valgus has a detrimental impact on health-related quality of life. Education is crucial for the management of all musculoskeletal conditions, although no previous research has evaluated the sources and quality of education accessed by patients with hallux valgus. Therefore, we aimed to evaluate the perceptions and attitudes of individuals with hallux valgus, including their educational experiences.

METHODS

A qualitative descriptive design was employed to gather data from individuals diagnosed with painful hallux valgus. Semi-structured interviews explored the perceptions, attitudes and educational experiences of participants. Interviews were recorded, transcribed verbatim, and analysed using the Framework Method. Respondent validation was used to ensure the rigour of the study findings.

RESULTS

Ten participants were interviewed, ages 26-72. Data analysis revealed five themes including the impact of hallux valgus, coping with hallux valgus, cause of hallux valgus, health professional support and education received. Hallux valgus was associated with a negative impact on health-related quality of life. Participants described a lack of high quality, accurate and reliable educational resources, and a variable experience with health professionals, which was often characterised by a lack of engagement and commitment and an overemphasis of referrals for specialist opinion.

CONCLUSION

Hallux valgus has a negative influence on well-being, including physical, mental, and social impacts. Health professionals should be responsive to patient needs and strive to implement person-centred care when indicated. There is also a need for the development of high-quality educational resources to help people with hallux valgus make informed decisions about their condition.

摘要

目的

拇外翻对健康相关生活质量有不利影响。教育对于所有肌肉骨骼疾病的管理至关重要,尽管此前尚无研究评估拇外翻患者获取教育的来源和质量。因此,我们旨在评估拇外翻患者的认知和态度,包括他们的教育经历。

方法

采用定性描述性设计,从被诊断为疼痛性拇外翻的个体中收集数据。半结构化访谈探讨了参与者的认知、态度和教育经历。访谈进行录音、逐字转录,并使用框架法进行分析。采用受访者验证来确保研究结果的严谨性。

结果

对10名年龄在26 - 72岁的参与者进行了访谈。数据分析揭示了五个主题,包括拇外翻的影响、应对拇外翻、拇外翻的病因、医疗专业人员的支持以及接受的教育。拇外翻与对健康相关生活质量的负面影响相关。参与者表示缺乏高质量、准确和可靠的教育资源,与医疗专业人员的经历各不相同,其特点往往是缺乏参与度和投入,且过度强调转诊至专科医生处寻求意见。

结论

拇外翻对幸福感有负面影响,包括身体、心理和社会方面的影响。医疗专业人员应响应患者需求,并在有指征时努力实施以患者为中心的护理。还需要开发高质量的教育资源,以帮助拇外翻患者就自身病情做出明智的决策。

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