Coelho-Medeiros María Elisa, Gálvez Alejandra P, Núñez Alicia, Le Roy Catalina, Riquelme Arnoldo, López-Espejo Mauricio
Departamento de Psiquiatría, Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.
Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.
Andes Pediatr. 2022 Dec;93(6):832-840. doi: 10.32641/andespediatr.v93i6.4095.
Coronavirus disease (COVID-19) and confinement have affected access to the health system and have impacted people's mental health, particularly families of children with autism spectrum di sorder (ASD).
To investigate the perceptions of parents of children with ASD regarding benefits, positive changes, and difficulties in behavioral management at home during the first con finement due to COVID-19 in Chile.
We performed an exploratory cross sectional qualitative study including 118 parents of individuals with ASD aged between 2 and 15 years. An online questionnaire, prepared by a multidisciplinary committee of national experts using Delphi methodology was applied, which contains four open-ended questions related to children's behavior (difficulties, improvements, benefits, and professional support required) during the pan demic.
Parents perceived that confinement increased emotional stress for adults and chil dren, which could exacerbate behavioral problems. The interviewees perceived improvements in child social-affective, individual autonomy, and communication skills. The family and resilience aspects, such as time-sharing that emerged during the pandemic to support children's needs, were appreciated. Parents also reported the need for professional support in behavioral and emotional management during confinement.
Caregivers value the integration of the family into therapies during confinement. It is necessary to complement these results with additional studies exploring different life contexts of families with children with ASD in Chile and the impacts of long term confinement.
冠状病毒病(COVID-19)及居家隔离措施影响了人们获得医疗系统服务的机会,并对人们的心理健康产生了影响,尤其是患有自闭症谱系障碍(ASD)儿童的家庭。
调查智利自闭症谱系障碍儿童家长对因COVID-19实施首次居家隔离期间在家中行为管理方面的益处、积极变化及困难的看法。
我们开展了一项探索性横断面定性研究,纳入了118名年龄在2至15岁的自闭症谱系障碍患儿的家长。应用了一份由国家专家多学科委员会采用德尔菲法编制的在线问卷,其中包含四个与疫情期间儿童行为(困难、改善、益处及所需专业支持)相关的开放式问题。
家长们认为居家隔离增加了成人和儿童的情绪压力,这可能会加剧行为问题。受访者察觉到孩子在社交情感、个人自主性和沟通技能方面有所改善。他们对家庭及适应力方面,如疫情期间为满足孩子需求而出现的时间分配情况表示赞赏。家长们还报告称在居家隔离期间需要行为和情绪管理方面的专业支持。
照顾者重视居家隔离期间家庭融入治疗。有必要通过进一步研究对这些结果加以补充,这些研究可探索智利自闭症谱系障碍患儿家庭的不同生活背景以及长期居家隔离的影响。