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Department of Epidemiology, Faculty of Medicine, University of Novi Sad, Serbia.
Centre for Disease Control and Prevention, Institute of Public Health of Vojvodina, Serbia.
J Intellect Disabil. 2023 Nov 9:17446295231213752. doi: 10.1177/17446295231213752.
Cancer is a global public health problem, but its exact prevalence in people with intellectual disabilities is still uncertain. This population, with limited health skills and complex health needs, faces many challenges in cancer prevention, screening, timely diagnosis and treatment. Furthermore, they are often underrepresented in general cancer prevention and screening policies across Europe, leading to widened disparities in health outcomes and premature mortality. Thus, unified national and local policies are needed to reduce inequalities and promoting a pan-European inclusion of people with intellectual disabilities. Our goal is to raise public awareness of this issue, including the involvement of people with intellectual disabilities, and promote engagement from relevant stakeholders. The COST Action 'Cancer- Understanding Prevention in Intellectual Disabilities' (CUPID) project will address health inequalities faced by people with intellectual disabilities in relation to cancer, and support the development of policy recommendations specifically tailored to their unique cognitive and healthcare needs, having a positive long-term impact on quality of life.
癌症是一个全球性的公共卫生问题，但其在智障人群中的实际患病率仍不确定。这一人群健康技能有限且健康需求复杂，在癌症预防、筛查、及时诊断和治疗方面面临诸多挑战。此外，在欧洲各地的一般癌症预防和筛查政策中，他们的代表性往往不足，导致健康结果方面的差距扩大和过早死亡。因此，需要统一的国家和地方政策来减少不平等现象，并促进全欧洲对智障人士的包容。我们的目标是提高公众对这一问题的认识，包括智障人士的参与，并促进相关利益攸关方的参与。“癌症——理解智障人群中的预防”（CUPID）成本行动项目将解决智障人群在癌症方面面临的健康不平等问题，并支持制定专门针对其独特认知和医疗需求的政策建议，对生活质量产生积极的长期影响。
