Department of Nursing and Physiotherapy, University of Lleida, Lleida, Spain.
Health Care Research Group (GRECS), Lleida Institute for Biomedical Research Dr. Pifarré Foundation, IRBLleida, Lleida, Spain.
Disabil Rehabil. 2024 Oct;46(20):4595-4610. doi: 10.1080/09638288.2023.2280057. Epub 2023 Nov 15.
This qualitative evidence synthesis aimed to identify and integrate findings where adults with fibromyalgia discussed how they managed their pain, and their perceptions of prescribed treatments from healthcare professionals.
A comprehensive search strategy was implemented in PubMed, Scopus, ISI Web of Science, and Cinahl Plus databases. The GRADE-CERQual framework was used to evaluate the findings confidence. The findings were analyzed using an inductive thematic analysis approach.
A total of 35 studies ( = 728) were included. The confidence in the findings ranged from high to low confidence. Patients with fibromyalgia often do not benefit from seeking medical attention due to provider stigma, and have varying views on medication effectiveness commonly reporting feeling like "walking chemists." They find mixed effects from exercise, and consider psychological support essential, although the benefits of cognitive-behavioral therapy were controversial. Combining cognitive-behavioral therapy with physical exercise appears more effective, while natural and complementary therapies have short-term benefits and high costs.
Pain management is a source for frustration and an unmet need for patients with fibromyalgia. The current findings provide crucial insight for providers and researchers; and support the need for fibromyalgia phenotyping and precision medicine approaches to pain management.Implications for RehabilitationChronic widespread pain is the defining feature of fibromyalgia, yet pain reduction is often an unmet need for these individuals.The lack of effective treatments resulting in long-term relief proves frustrating for patients and healthcare providers.Rehabilitation professional should consider the unique insight into this complex, heterogeneous condition that this qualitative synthesis provides to better understand their patient's perspective on pain management.Given the differing perspectives on pain treatment approaches individuals with fibromyalgia report, providers should discuss with each patient their current strategies and take a patient-centered, individualized approach to form an effective treatment plan.
本定性证据综合旨在识别和整合成人纤维肌痛患者讨论如何管理疼痛以及他们对医疗保健专业人员开出的治疗方法的看法的研究结果。
在 PubMed、Scopus、ISI Web of Science 和 Cinahl Plus 数据库中实施了全面的检索策略。使用 GRADE-CERQual 框架评估研究结果的可信度。使用归纳主题分析方法分析研究结果。
共纳入 35 项研究( = 728)。研究结果的可信度范围从高可信度到低可信度。由于提供者的污名化,纤维肌痛患者通常不会因寻求医疗关注而受益,并且对药物有效性的看法也各不相同,他们普遍报告感觉自己像“行走的药剂师”。他们发现运动的效果不一,认为心理支持必不可少,尽管认知行为疗法的益处存在争议。将认知行为疗法与体育锻炼相结合似乎更有效,而自然和补充疗法具有短期效益和高昂的成本。
疼痛管理是纤维肌痛患者感到沮丧和未满足需求的根源。目前的研究结果为提供者和研究人员提供了重要的参考;并支持对纤维肌痛表型和精准医学疼痛管理方法进行研究的必要性。
慢性广泛性疼痛是纤维肌痛的特征,但这些患者往往无法减轻疼痛。缺乏有效的治疗方法导致长期缓解,这对患者和医疗保健提供者来说是令人沮丧的。康复专业人员应考虑这种定性综合分析为他们提供的对这种复杂、异质状况的独特见解,以便更好地了解患者对疼痛管理的看法。鉴于纤维肌痛患者报告的疼痛治疗方法存在不同的观点,提供者应与每位患者讨论他们当前的策略,并采取以患者为中心、个体化的方法制定有效的治疗计划。