Neurology Department, Faculty of Medicine, University of Niš, Niš, Serbia.
Clinic of Neurology, University Clinical Centre Niš, Niš, Serbia.
Front Public Health. 2023 Nov 28;11:1266415. doi: 10.3389/fpubh.2023.1266415. eCollection 2023.
Dementia is among the leading causes of death and disability worldwide, having a major impact not only on the affected person but also on all of society. The Internet is a popular and growing source of health-related information for patients, family members, carriers, and physicians. TikTok, one of the most popular social media platforms, is an important source for knowledge access and adoption. However, the quality of health information on TikTok has not been sufficiently studied.
To evaluate the quality of the information provided in the most popular videos on dementia shared on TikTok.
A cross-sectional study.
The top 100 most popular videos on TikTok obtained by searching the hashtag "dementia" were included in the study and grouped based on their source and content. The popularity of the videos was estimated based on the numbers of likes, comments, and shares. The quality of health-related information was evaluated using the DISCERN score and the Global Quality Score (GQS).
Videos had a median duration of 33.29 s; the median number of likes was 635,100, with a total of 93,698,200 likes, 903,859 comments, and 5,310,912 shares. The source (uploader) of 65% of the videos was family members, while only 4% were uploaded by doctors. The content was lifestyle-related in 62% of the videos, while 12% of the videos were for fun. Videos had a median DISCERN score of 22.5 (IQR 20-27) and a median GQS of 2 (IQR 1-3). The videos uploaded by doctors had the highest quality scores and the lowest popularity.
The most popular dementia videos on TikTok are mostly shared by family members and are of poor quality. Given the major public health issues associated with dementia, experts must provide appropriate and active assistance to patients in interpreting the information identified.
痴呆症是全球导致死亡和残疾的主要原因之一，不仅对患者本人，而且对整个社会都有重大影响。互联网是患者、家属、携带者和医生获取健康相关信息的热门且不断增长的来源。TikTok 是最受欢迎的社交媒体平台之一，是获取和采用知识的重要来源。然而，TikTok 上健康信息的质量尚未得到充分研究。
评估在 TikTok 上分享的关于痴呆症的最受欢迎视频中提供的信息质量。
一项横断面研究。
通过搜索标签“痴呆症”，共纳入了 TikTok 上最受欢迎的 100 个视频，并根据来源和内容进行分组。根据点赞、评论和分享的数量来估计视频的受欢迎程度。使用 DISCERN 评分和全球质量评分（GQS）评估健康相关信息的质量。
视频的平均时长为 33.29 秒；平均点赞数为 635100，总点赞数为 93698200，评论数为 903859，分享数为 5310912。65%的视频来源（上传者）是家属，而只有 4%是医生上传的。62%的视频内容与生活方式相关，而 12%的视频是为了娱乐。视频的平均 DISCERN 得分为 22.5（IQR 20-27），平均 GQS 为 2（IQR 1-3）。医生上传的视频质量得分最高，人气最低。
TikTok 上最受欢迎的痴呆症视频大多是由家属分享的，质量较差。鉴于痴呆症与重大公共卫生问题相关，专家必须为患者提供适当和积极的帮助，以解释所确定的信息。
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