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创新试点干预改善特定学习障碍儿童家庭生活质量的设计、实施和评估——一项随机对照试验。

Design, Implementation and Evaluation of an Innovative Pilot Intervention to Improve the Family Quality of Life of Children with Specific Learning Disabilities-A Randomized Controlled Trial.

机构信息

Department of Social Work, School of Health Sciences, Hellenic Mediterranean University, 71004 Heraklion, Greece.

Department of Psychology, Faculty of Social Sciences, Gallos Campus, University of Crete, 74100 Rethymno, Greece.

出版信息

Int J Environ Res Public Health. 2023 Dec 18;20(24):7192. doi: 10.3390/ijerph20247192.

Abstract

: The high prevalence of learning disabilities among children confirm that learning disabilities are surprisingly common. In the absence of routine screening, many children still go undetected with a huge individual and family burden, while at the same time, the findings of existing interventions are conflicting. This study reports on the design, implementation and evaluation of an innovative pilot intervention aiming at improving the quality of life of the family of children with specific learning disabilities. : For the purposes of this study, we ran a randomized controlled trial employing an experimental research design with two groups (intervention and control). The study population comprised parents of children with specific learning disabilities. Out of the 71 individuals that were eligible for randomization, 42 were allocated to the intervention, and 29 to the control group. A brief parenting intervention model was employed, aiming at improving parenting skills through a stepwise process. The intervention included four skill building sessions conducted over a period of 6 weeks. "Parenting style" (including three dimensions: "Authoritative", "Authoritarian" and "Permissive") and "Family Quality of life" (including five dimensions: "Family Interaction", "Parenting", "Emotional Well-being", "Physical/Material Wellbeing" and "Disability-Related Support") were employed as the outcome measures of this study. Two validated questionnaires were used to measure the study outcomes: "the Parenting Style Questionnaire" and the "Family Quality of Life Scale (FQOL) Questionnaire". The questionnaires were applied at the pre- and post-intervention level. : An analysis showed that except for the "permissive parenting style", the intervention and control group had statistically significant differences in all the "Parenting style" and the "Quality of life" dimensions at the post-intervention level. In the intervention group, none of the study dimensions improved at a statistically significant level at the post-intervention level compared to pre-intervention level. According to the cluster analysis, which re-examined successful vs. unsuccessful cases, the intervention was found to have an effect on the average values of all the "quality of life" and "parenting style" dimensions, except for the "Authoritarian Parenting Style". : The study offers evidence on the dimensions of parenting and quality of life mostly affected by a brief intervention as well as on the feasibility, practicality and acceptance of such interventions in local communities.

摘要

: 儿童学习障碍的高发率证实了学习障碍非常普遍。由于缺乏常规筛查,许多儿童仍然未被发现,给个人和家庭带来了巨大的负担,而同时,现有干预措施的结果也存在冲突。本研究报告了一项创新试点干预的设计、实施和评估,旨在提高有特定学习障碍儿童家庭的生活质量。 : 在这项研究中,我们采用了随机对照试验,采用实验研究设计,分为两组(干预组和对照组)。研究人群包括有特定学习障碍儿童的父母。在 71 名符合随机分组条件的人中,有 42 名被分配到干预组,29 名被分配到对照组。采用了一个简短的育儿干预模式,旨在通过逐步过程提高育儿技能。干预包括四个技能建设课程,为期 6 周。“育儿风格”(包括三个维度:“权威型”、“专制型”和“放任型”)和“家庭生活质量”(包括五个维度:“家庭互动”、“育儿”、“情绪健康”、“物质/经济福利”和“残疾相关支持”)作为本研究的结果衡量指标。使用了两个经过验证的问卷来衡量研究结果:“育儿风格问卷”和“家庭生活质量量表(FQOL)问卷”。问卷在干预前和干预后进行了应用。 : 分析表明,除了“放任型育儿风格”外,干预组和对照组在干预后的所有“育儿风格”和“生活质量”维度上都有统计学上的显著差异。在干预组中,与干预前相比,在干预后没有一个研究维度在统计学上有显著改善。根据再分析成功和不成功案例的聚类分析,发现干预对所有“生活质量”和“育儿风格”维度的平均值都有影响,除了“专制型育儿风格”。 : 该研究提供了关于受简短干预影响的育儿和生活质量维度的证据,以及关于此类干预在当地社区的可行性、实用性和可接受性的证据。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/98c2/10742889/dfad826d603f/ijerph-20-07192-g001.jpg

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