揭示隐匿意识测试结果：伦理翻译框架。
Disclosing Results of Tests for Covert Consciousness: A Framework for Ethical Translation.
机构信息
Center for Neurotechnology and Neurorecovery, Department of Neurology, Massachusetts General Hospital and Harvard Medical School, 101 Merrimac Street, Suite 310, Boston, MA, 02114, USA.
Western Institute of Neuroscience, Western University, London, ON, Canada.
出版信息
Neurocrit Care. 2024 Jun;40(3):865-878. doi: 10.1007/s12028-023-01899-8. Epub 2024 Jan 19.
The advent of neurotechnologies including advanced functional magnetic resonance imaging and electroencephalography to detect states of awareness not detectable by traditional bedside neurobehavioral techniques (i.e., covert consciousness) promises to transform neuroscience research and clinical practice for patients with brain injury. As these interventions progress from research tools into actionable, guideline-endorsed clinical tests, ethical guidance for clinicians on how to responsibly communicate the sensitive results they yield is crucial yet remains underdeveloped. Drawing on insights from empirical and theoretical neuroethics research and our clinical experience with advanced neurotechnologies to detect consciousness in behaviorally unresponsive patients, we critically evaluate ethical promises and perils associated with disclosing the results of clinical covert consciousness assessments and describe a semistructured approach to responsible data sharing to mitigate potential risks.
神经技术的出现，包括先进的功能性磁共振成像和脑电图，以检测传统床边神经行为技术无法检测到的意识状态（即隐性意识），有望改变神经科学研究和脑损伤患者的临床实践。随着这些干预措施从研究工具发展为可操作的、指南认可的临床测试，临床医生如何负责任地交流他们产生的敏感结果的伦理指导至关重要，但仍未得到充分发展。借鉴经验和理论神经伦理学研究的见解，以及我们在使用先进的神经技术检测行为无反应患者意识方面的临床经验，我们批判性地评估了披露临床隐性意识评估结果的伦理承诺和风险，并描述了一种负责任的数据共享的半结构化方法，以减轻潜在风险。
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