Vanderbilt University, USA.
Northern Illinois University, USA.
Autism. 2024 Aug;28(8):2080-2089. doi: 10.1177/13623613231221126. Epub 2024 Jan 25.
Parents of individuals with autism face many challenges in finding appropriate services and support for their children, and they also play an important role in advocating for their children's rights and needs. Despite the increasing availability of advocacy programs, it is still uncertain how to best encourage parents to advocate for their children. This study explored the connection between parents' knowledge and sense of empowerment, and how these factors relate to three types of advocacy activities (i.e. individual, peer, and systemic). The findings reveal that feeling empowered has a greater impact on advocacy than simply having knowledge. In addition, the study found that individual advocacy correlates to more peer advocacy, which also correlates to more systemic advocacy. These results can help researchers and professionals to better develop programs to increase parent advocacy and, in turn, help improve the lives of individuals with autism.
自闭症患者的父母在为孩子寻找合适的服务和支持方面面临许多挑战,他们在倡导孩子的权利和需求方面也发挥着重要作用。尽管倡导项目越来越多,但仍不确定如何最好地鼓励父母为孩子发声。本研究探讨了父母的知识和赋权感之间的联系,以及这些因素与三种类型的倡导活动(即个人、同伴和系统)之间的关系。研究结果表明,赋权感对倡导的影响大于仅仅拥有知识。此外,研究还发现,个人倡导与更多的同伴倡导相关,而同伴倡导也与更多的系统倡导相关。这些结果可以帮助研究人员和专业人士更好地开发计划,以增加家长的倡导力度,进而帮助改善自闭症患者的生活。