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VISIBL-MS:一个双语教育框架,旨在提高对早期多发性硬化症的认识。

VISIBL-MS: A bilingual educational framework to increase awareness of early multiple sclerosis.

机构信息

Division of Multiple Sclerosis and Neuroimmunology and Comprehensive Multiple Sclerosis and Neuroimmunology Center, UConn Health, Farmington, CT, USA.

School of Medicine, University of Connecticut, Farmington, CT, USA.

出版信息

Mult Scler. 2024 Apr;30(4-5):585-593. doi: 10.1177/13524585241228739. Epub 2024 Feb 15.

Abstract

BACKGROUND

Despite advancements in treatments of multiple sclerosis (MS), there is a lack of awareness of early MS symptoms, especially in students and the public, contributing to delays in diagnosis and treatment. This review aims to identify gaps in tools to increase awareness and to provide a bilingual framework to facilitate recognition of early MS symptoms.

METHODS

We performed a literature review to determine the use of English and Spanish mnemonics in MS education for medical students and patients.

RESULTS

There is no educational tool to help remember the early signs of MS at present. Here we present a framework for early awareness encompassed in the bilingual mnemonics VISIBLY (English) and VISIBLE (Spanish). VISIBLY stands for (1) Vision changes: Painful vision loss, loss of color vision or double vision; (2) Belly or Back numbness and Balance issues; (3) Limb weakness or Numbness; (4), Young people. Spanish version is included in the manuscript.

CONCLUSION

We posit that VISIBL-MS provides a framework for MS awareness that addresses the interconnection between language, culture, health literacy, and health outcomes and can be a useful educational tool to tackle the effects of health literacy on diverse communities.

摘要

背景

尽管多发性硬化症(MS)的治疗方法有了进步,但人们对早期 MS 症状的认识仍然不足,尤其是在学生和公众中,这导致了诊断和治疗的延误。本综述旨在确定提高认识的工具方面的差距,并提供一个双语框架,以促进对早期 MS 症状的识别。

方法

我们进行了文献回顾,以确定在医学生和患者的 MS 教育中使用英语和西班牙语助记符的情况。

结果

目前没有专门用于帮助记住 MS 早期迹象的教育工具。在这里,我们提出了一个早期意识的框架,包含在双语助记符 VISIBLY(英语)和 VISIBLE(西班牙语)中。VISIBLY 代表:(1)视力变化:疼痛性视力丧失、色觉丧失或复视;(2)腹部或背部麻木和平衡问题;(3)肢体无力或麻木;(4)年轻人。西班牙语版本包含在本文档中。

结论

我们假设 VISIBL-MS 提供了一个 MS 意识的框架,该框架解决了语言、文化、健康素养和健康结果之间的联系,并且可以成为解决健康素养对不同社区影响的有用教育工具。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9fac/11010545/d4bd2e200516/10.1177_13524585241228739-fig1.jpg

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